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Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 14 6:52am | Replies (89)
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@roberthall0452

Hello @harvie, I have been treated and am now in remission. Looking for anyone with this condition to share notes. I just relocated to Az from the east coast and would like to find a doctor so I would not have to fly back and forth. Any info would be helpful.

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Replies to "Hello @harvie, I have been treated and am now in remission. Looking for anyone with this..."
sweede536 | @sweede536 | Aug 9, 2020

I've had it for 4 1/2 years. I'm 74 and its in remission and still get two infusions every 6 weeks.

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sweede536 | @sweede536 | Aug 14, 2020

Have had MCL for 4 1/2 years. After 1 year at stage 3 I went into remission. Since then I have been on retuxin and a infusion called Ivig which builds up your system since ten. I'm 74 and was in great condition. Seems like the retuxin has really hurt my skin and get purple circles all over my arms. Skin looks like a man of 100 years old.
I see where people usually get off of retuxin after two years and I have been on it 3 1/2 years. Confussed.

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