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C. difficile – Are your guts ever normal again?Digestive Health | Last Active: Dec 30, 2022 | Replies (628)
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Replies to "@sandyabbey @losthope I am so encouraged to hear that you are on Dificid (fidaxamicin). That's the..."
@pines. I’ve been finished with my Dificid for 7 days now. I’m so praying that I’m going to make it this time. I have had 3 relapses. 2 from Flagyl & the last one from vancomycin. I went 10 days off the vancomycin & thought I was ok, then I relapsed I was so sick I was taken to the hospital in am ambulance bevause I was so weak I couldn’t stand of lift my arms. I felt better after the IV’s, but was still too weak to even go anywhere within help for over a month. They put me on Dificid then. I’m 7 days finished it & my stomach still doesn’t feel right. I’m praying that it’s just part of the healing process. I haven’t had diarrhea t all. I did have 3 normal stools at first & now it seems like I have to go & it takes forever. I do go but it’s not very much & it’s small. I hope that’s not a bad sign. If I relapse again I’ll have to have the FMT transplant. I’m nervous because I’m down to 85 pounds. I was tiny to begin with. I’ve lost 25 pou in 2 mknths of this awful thing. The drug companies should be ashamed for chatgimg people thus astronomical amount for Dificid. It was 4400.00. My insurance paid it all but 1300.00. That’s horrible. I had to have it though. We are on social security & had to dip into our savings to get it. I just pray I’m ok now. I go to my GI on Friday. I hope I don’t relapse before then.
My go won’t order it without a relapse even though I’m not getting better. Very disappointed