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@pamelastewart5

My 40-year-old son, Caleb, started on Epidiolex 5 days ago. It was a long procedure to get approved, but so was getting approved for Medical Marijuana. He has Lennox-Gestault Syndrome. His diagnosis is based on his symptoms and the course of his illness, which started at age 3, not on his EEG. This is the first drug he's tried which is specific for Lennox-Gestault. Insurance is covering most of the cost. He is starting at a very low dose which will be slowly increased. The dose now is not yet therapeutic. No seizures since he started Epidolex, but in recent years he no longer has daily seizures. We haven't seem any other changes yet. I will keep the group posted on his progress.

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Replies to "My 40-year-old son, Caleb, started on Epidiolex 5 days ago. It was a long procedure to..."

@pamelastewart5
Hi
I was curious if Caleb was having any side effects?
In studies about 94% of patients did. The most common was tiredness.
Fingers crossed it works well for him.
Jake