Unexplained diarrhea,malabsorption,dizziness,feeling faint, confusion

I am getting the same answer here it’s a GI problem but no one has the answer. Looks like we are pretty @much on our own. I have to keep searching no other choice at this point. Sending positive vibes your way.

@ajstaley @beanglow
I have the same symptoms, as well as peripheral neuropathy and more. I was diagnosed with gastroparesis years ago. Have you been tested? The “stomach emptying” test can come back false negative... my last one did but whenever I have an endo, etc., my gastroenterologist has to empty my stomach of its contents. I have bladder and bowel incontinence which has dramatically worsened. Trouble swallowing, dizziness, imbalance, staggering, falling, near fainting (syncope) and many other diseases/conditions. Finally, after my own research, my neurologist diagnosed me with autonomic neuropathy (AN) which ties a lot of it together.

I do not have Parkinson disease, am not diabetic.

I found the Cleveland Clinic site on AN to be the most helpful. Check it out, also gastroparesis. I hope this helps you. God bless you.

@ajstaley @beanglow
I have the same symptoms, as well as peripheral neuropathy and more. I was diagnosed with gastroparesis years ago. Have you been tested? The “stomach emptying” test can come back false negative... my last one did but whenever I have an endo, etc., my gastroenterologist has to empty my stomach of its contents. I have bladder and bowel incontinence which has dramatically worsened. Trouble swallowing, dizziness, imbalance, staggering, falling, near fainting (syncope) and many other diseases/conditions. Finally, after my own research, my neurologist diagnosed me with autonomic neuropathy (AN) which ties a lot of it together.

I do not have Parkinson disease, am not diabetic.

I found the Cleveland Clinic site on AN to be the most helpful. Check it out, also gastroparesis. I hope this helps you. God bless you.

@ajstaley @beanglow
I have the same symptoms, as well as peripheral neuropathy and more. I was diagnosed with gastroparesis years ago. Have you been tested? The “stomach emptying” test can come back false negative... my last one did but whenever I have an endo, etc., my gastroenterologist has to empty my stomach of its contents. I have bladder and bowel incontinence which has dramatically worsened. Trouble swallowing, dizziness, imbalance, staggering, falling, near fainting (syncope) and many other diseases/conditions. Finally, after my own research, my neurologist diagnosed me with autonomic neuropathy (AN) which ties a lot of it together.

I do not have Parkinson disease, am not diabetic.

I found the Cleveland Clinic site on AN to be the most helpful. Check it out, also gastroparesis. I hope this helps you. God bless you.

Thanks for the positive vibes. I'm going to go back to U of M but if they say there is nothing they can do than Mayo will be my last resort and maybe surgery there.@ajstaley

Thanks for your reply. I haven't been tested for gastroparesis. I also have bladder and bowel incontinence, bloating, distention, gas and constipation, and chronic diarrhea. I will check out the Cleveland Clinic site and ask about being tested for gastroparesis. How do they do the "stomach emptying" test? You have been very helpful. I hope things improve for you. May God bless you.

Hi. No. It’s the stomach’s inability to empty into the intestines, so food stays in your stomach too long... way too many hours or even days. Also, medicine sits on top of the food and doesn’t absorb like it should. Acid or even food from the stomach contents shoot back up into the esophagus (reflux). Symptoms can include nausea, vomiting undigested food, feeling full right away when you eat, bloating, lack of appetite and weight loss (which can be serious) and problems controlling your sugar levels. It’s often caused by diabetes... which I don’t have, narcotics/pain meds, and other things. I’ve had seasons with it where I couldn’t keep water down.
There are two major medications used. Unfortunately, they didn’t help me but they do help a lot of people. Research the side effects first! Only one is FDA approved, Reglan. The other is available WITH PRESCRIPTION through online companies in Canada, Europe and some other countries. I used some place in Canada.
There are different schools of thought about diet, but in general, eat small portions frequently (5 - 6 x/day) and avoid fatty, greasy, spicy foods. I can’t tolerate any acidic foods/beverages (red sauces, onions, peppers, etc.) or things that are naturally hard to digest anyway like meat and nuts. No orange, pineapple, or fruit juice, and I’m sure we’re all aware that no grapefruit juice ever if we take medicine. It can not only cause too much acid, it makes our Rx under or over work. Carbonated drinks don’t sit well and aren’t good for us anyway, and caffeine in coffee, tea, soda is corrosive in our stomach. When you eat fiber (which some experts still advise a low fiber diet), be sure to drink plenty of water so it doesn’t cause a bowel blockage. The constipation can be serious. I get both, constipation and diarrhea. Avoid wearing real tight pants/belts that put pressure on your stomach and make it easier for food to regurgitate. Not that we can avoid it, but stress can make it worse.
I have no medical credentials and am not giving medical advice. But I’ve got so many diseases and have been sick for so many years that I always do my own research. I hope my personal experience helps you. The Cleveland Clinic has a good overview on gastroparesis. Here’s the link: https://my.clevelandclinic.org/health/diseases/15522-gastroparesis
God bless you.
Peggy

Thanks for your reply. I haven't been tested for gastroparesis. I also have bladder and bowel incontinence, bloating, distention, gas and constipation, and chronic diarrhea. I will check out the Cleveland Clinic site and ask about being tested for gastroparesis. How do they do the "stomach emptying" test? You have been very helpful. I hope things improve for you. May God bless you.