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Small Fiber Neuropathy?

Neuropathy | Last Active: Feb 12, 2023 | Replies (214)

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@johnbishop

Hi Elsa @elsa, I have idiopathic small fiber peripheral neuropathy. I think any of the neurologists at Mayo Clinic Rochester would be good. I was diagnosed by Dr. Nathan Young. I have no medical training or back so don't know if the symptoms sound like small fiber neuropathy but it could be. There is another discussion you may want to read through that sounds similar to your symptoms.

Groups > Brain & Nervous System > Burning sensations on skin pressure points, i.e. elbows, forearms, hands buttocks, feet.
-- https://connect.mayoclinic.org/discussion/burning-sensations-on-skin-pressure-points-i-e-elbows-forearms-hands-buttocks-feet/

This short video by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed.
https://www.youtube.com/watch?v=3FrQ7Glvgok

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Replies to "Hi Elsa @elsa, I have idiopathic small fiber peripheral neuropathy. I think any of the neurologists..."

Some of us have been at this for awhile, and know most of this information, but for the newcomers, it might be useful: https://www.webmd.com/pain-management/ss/slideshow-neuropathy?ecd=wnl_cbp_012619&ctr=wnl-cbp-012619_nsl-LeadModule_cta&mb=c5Z0JE7XLMx9bKjb5oUBKeHnVev1imbCaR5NAlFXatM%3d
Also, with small fiber neuropathy, nerve condition studies usually are normal.

I've been biopsied with a firm diagnosis of idiopathic small fiber neuropathy but have no pain whatsoever. I just have numbness which is getting worse and spreading. Has anyone at all been diagnosed with ANA and Lupus without any pain? I'll be starting IVIG very soon and any tips would greatly appreciated.
Thanks, Rose