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Anyone have Laryngeal Sensory Neuropathy?

Ear, Nose & Throat (ENT) | Last Active: Nov 26 4:47pm | Replies (191)

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@arlinebringhurst

I have had a chronic cough for going on 5 years now following a bout with mono. It all started with a very bad sore throat which was concentrated on the left side of my throat. Months after my episode and many consults with doctors, I went on line one day and ran across someone suffering from Laryngeal Sensory Neuropathy and am convinced this is what I have. I have done chest X-rays, barium swallow and a scope in my throat - all normal ranges. One health care provider prescribed Gabapentin and it worked for about 3 months but eventually quit working. My cough starts with a tickle when I swallow my first bite of food. The tickle is in the very spot where the sore throat was. Crumby things like cookies and crackers are the worst. Once I have my coughing jag, it is followed by constant throat clearing and phlegmy throat for a half an hour or so. I can never eat without having a glass of ice water on hand which seems to calm it down. Post nasal drip or anything that affects that area such as inhaling smoke, cold air after being in a war room can trigger the tickle. I’ve heard about the Borox I he toons but I’m a little freaked about that. The biggest frustration is not being heard by my doctors.

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Replies to "I have had a chronic cough for going on 5 years now following a bout with..."

Hello @arlinebringhurst, Welcome to Connect. It must be frustrating not being heard by your doctors. Have you thought about trying to get a second opinion to find a treatment? Here are some links from earlier in this discussion that may offer some help.

Use of Botulinum Toxin Type A for Chronic Cough
https://jamanetwork.com/journals/jamaotolaryngology/fullarticle/496294

Botox may quiet chronic cough
https://www.reuters.com/article/us-botox-cough/botox-may-quiet-chronic-cough-idUSTRE64Q5GQ20100527

Treatment of chronic neurogenic cough with in-office superior laryngeal nerve block.
https://www.ncbi.nlm.nih.gov/pubmed/29668037

@tkubby @mjahall and @kimduncan1211 may have some suggestions for you.

Hi, @arlinebringhurst - just a thought, since I've also dealt with chronic cough and went through a lot of testing for reflux, sinus issues, allergy, asthma, etc., plus various medications. What finally seems to have helped me is taking mometasone and formoterol (Dulera). It may have also helped me to move from a 70-year-old home to a 20-year-old one.