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Anyone have Laryngeal Sensory Neuropathy?
Ear, Nose & Throat (ENT) | Last Active: 5 days ago | Replies (197)Comment receiving replies
Hello @tkubby, welcome to Mayo Clinic Connect. — I'm tagging @alaskaann, @jeffrow, @steeldove, @2011panc who have all discussed autonomic neuropathy in a previous post. Hopefully they can share their thought and suggestions with you.
Mayo Clinic has information on the diagnosis and treatment for autonomic neuropathy here:
— https://www.mayoclinic.org/diseases-conditions/autonomic-neuropathy/diagnosis-treatment/drc-20369836
I did find a couple of sites that may be helpful.
What LPR Has to Do with Laryngeal Sensory Neuropathy & Chronic Cough
-- https://www.refluxgate.com/laryngeal-sensory-neuropathy
Pregabalin Shows Promise as Treatment Option for Laryngeal Sensory Neuropathy
-- https://www.enttoday.org/article/pregabalin-shows-promise-as-treatment-option-for-laryngeal-sensory-neuropathy/
Have you been recently diagnosed with larynx sensory neuropathy?
John
Replies to "Hello @tkubby, welcome to Mayo Clinic Connect. — I'm tagging @alaskaann, @jeffrow, @steeldove, @2011panc who have..."
Yes. I've suffered from the 'chronic cough' that went undiagnosed by a number of specialist for 6-7 years. I am now being treated for laryngeal neuropathy. I'd like to learn more about what is in my future?
Please see my ENTs note to me:
Nice to meet you today, the receptor I was thinking of is P2RX3. It is receptor involved in pain detection. The medication is called gefapixant. I have to amend what I was saying earlier today - the study was for refractory chronic cough not laryngeal hypersensitivity of the type we suspect you have. Generally speaking refractory chronic cough aka neurogenic cough is thought to be on the same spectrum of laryngeal hypersensitivity conditions so maybe there is some role for this kind of medication in treating your symptoms as well. I do not have experience prescribing it since it is approved only in the EU.
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It was a few years back but I have had a chronic cough for 15 plus years. I really would like to talk with others that are going through the same thing as me but can not find anyone.