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julesa (@julesa)

Logopenic Progressive Aphasia

Caregivers | Last Active: Jan 17, 2021 | Replies (33)

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Welcome to Connect, @julesa. I think @dianajane and @hopeful33250 will also be interested in joining this discussion.

As an FYI, we have a few discussions related to aphasia elsewhere. But I'm really glad that you started this discussion for caregivers.

– Let's "Talk" About Aphasia https://connect.mayoclinic.org/discussion/june-is-national-aphasia-month/
– Brain Tumors and Aphasia https://connect.mayoclinic.org/discussion/brain-tumors-and-aphasia/
– Agraphia and Anomia https://connect.mayoclinic.org/discussion/agraphiaanomia/

Jules, your husband was so young when diagnosed and still is. I'm sure this is not how you imagined your future together. What thoughts might you have to share about mourning loss of what you thought was to be (if you don't mind my asking)?

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Replies to "Welcome to Connect, @julesa. I think @dianajane and @hopeful33250 will also be interested in joining this..."

It’s a long journey with this disease that Mayo said is rare. I recently joined a support group through Mayo which I find helpful. I feel I won’t be looking forward to retirement as I won’t have him to share it with. My faith is what is keeping me going and taking one day at a time. God has his plan.