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julesa (@julesa)

Logopenic Progressive Aphasia

Caregivers | Last Active: Jan 17 8:04pm | Replies (33)

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@remi54

Hi,
My husband was diagnosed with primary progressive aphasia at 64. He was also diagnosed with posterior cortical atrophy at that time. That was 5 years ago and in that time he has gotten a lot worse. Most of the tome I have no idea what he is talking about. I am sometimes able to figure it out…that's a good day! He gets really frustrated with his inability to say what he means.
He also has a lot of visual and cognitive issues. I have to help him with pretty much everything. It is a very demanding, stressful, and scary illness.
Stay strong and take care of you!

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My husband hasn’t talked for years and is living in a memory care unit. The staff are excellent and I visit daily. Life is so lonely 😢

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