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Need Patients' Experience with Mayo Clinic. Is it worth it?
Hello, I was wondering if there is a substantial difference in quality between a top 1 hospital compared to a top 10 or 20 hospital in the nation. So I am a 25 year old, 135 lbs, 5'10'' male who eat well, sleep well, and exercise. 2 Years ago, I had laser eye surgery where I was a very healthy individual have not gotten sick or the cold for 14 years. Part of the recovery regimen was using corticosteroids for 6 weeks and I developed systemic effects. Immediately, I had the swollen face & angioedema. One month later, I had a blood pressure of 160/100 with a heart beat of 100 at rest. Stopped since then (a bit over 2 years) and I still have the symptoms ( chest pain, headaches, light headedness , and concentration problems). I went through various doctors (about 25), including endocrinologists and neurosurgeons at Weill Cornell, Mt. Sinai, and NYU Langone in addition to private practices. I have some lab tests that showed slight to moderate elevated cortisol levels via. the 24 hour urine cortisol test and midnight salivary test. The doctors here seem to not care and are not really helping. i was wondering if it is worth the time and money to go out of network to the Mayo Clinic at Rochester, Minnesota or keep on trying in NYC. Losing hope and starting to get depressed.I have also had 1 slightly elevated reading of ACTH and morning Serum cortisol
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I'm sorry you had a bad experience. Did you contact them about your temozolomide? Your paperwork should be able to be found on the portal under notes and documents. Did you try looking there?
JoDee
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2 ReactionsI was told they could not place their attachment on the portal any place.
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1 ReactionHmmmm....
Could they email or fax it to you?
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2 ReactionsDoctors nurse said they can't email it...against heppa law. They can fax it but we don't have a fax. So I asked if they'd put it in the mail but no word back about that:(
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1 ReactionHave them FAX to your pharmacy.
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2 ReactionsI am in Mn now at Mayo. It’s worth everything to come here. In 2015 they changed my life with a brain surgery. I’m here for something else but I know I will get the best care in the nation here.
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2 ReactionsThank you! I was wondering how the surgeons and patient care was similar or different than the Jacksonville campus which is closer to me. I believe MN has more NSs and that’s comforting in case something goes awry.
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1 ReactionA team from Barrows Brain and Spine did my surgery and they did a wonderful job. Then I went to Ironwood Cancer Center for my 1st round of chemo and radiation. Now I'm going to Mayo Clinic and really am not impressed at all:( I am not impressed with my doctor at all.
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1 Reaction@bjh369, it should not be like that. I encourage you to contact the
Office of Patient Experience
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
- Scottsdale campus 480-301-4938
- Phoenix campus 480-342-2651
- Jacksonville campus 904-953-2019
- Rochester, Minnesota, campus 507-284-4988
Email: officeofpatientexperience@mayo.edu
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2 ReactionsNow the Doctor says in a recent message through the portal that he's gone back over the MRI and says that he'd gone over it with Don & i on the 25th of January. However there were only 2 MRI pictures on his computer screen during our visit that day.....1 was pre-surgery MRI & the other was recent. He just said, "Even though the report didn't say so, the MRI looked good". At that time I hadn't seen the recent MRI report so I didn't know what questions to ask, but I've seen it now and why he didn't show us the mass the Simmon Med imaging person saw...I have no clue! Not a very comforting feeling for me.
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