← Return to Need Patients' Experience with Mayo Clinic. Is it worth it?

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@karlene

I have smoldering multiple myeloma, multiple sclerosis, CHF, and high BP. I went to the Mayo Clinic about 15 months ago and had tests results that answered a lot of questions for me. It didn't change any of my diagnoses but I had answers for the first time. I had from 2-5 tests every day for 5 days. Like you, I am out of network and have a PPO. I called my insurance company and they told me I could get a second opinion anywhere I chose to go. The clinic costs to me were about $1500 as near as I can figure out from my old records, many a little more. I had expected to spend maybe $5000 so this was good. My airfare, hotel, and meals were extra, of course. I shopped around for airfares and hotel costs and stayed across the street from the clinic. I am thinking about going back again as it looks like I may need to start treatment for the myeloma and would want a second opinion on this aspect.

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Replies to "I have smoldering multiple myeloma, multiple sclerosis, CHF, and high BP. I went to the Mayo..."

Hi, Karlene. Welcome to Mayo Connect. That is great to hear that your insurance company was ready to support your quest to get a 2nd opinion. It is even better to hear that you got a lot of your questions answered. My experience (ogan transplant) tells me that with answers, I at least knew what I was facing, and I could prepare for whatever was in my future.

Here are a couple of sites where other members are discussing and sharing their experiences with related diagnoses. I invite you to participate anywhere. You can read, post comments, ask questions. You
https://connect.mayoclinic.org/group/blood-cancers-disorders/
https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/