Small Cell Lung Cancer: Let's connect

Margo, my husband was just diagnosed with small cell lung cancer which has spread to his liver and bladder. The diagnosis is poor, yet with new treatments, keeping it at bay and living with it is increasingly possible. They found his secondary tumor in the liver before Christmas and the primary lung mass on January 6th. Luckily we live in Tampa Florida and He decided to be treated at Moffitt by a small cell Thoracic specialist, Dr Alberto Chiappori who is doing a clinical trial For small cell endocrine Lung cancer study . He saw my husband and started him on a 3 cocktail Chemo and immunotherapy treatment immediately. Pop had his first treatment January 15th,16th and 17th. So far he has had NO side effects, yet fatigue often happens this second week.
We have been told that This type of cancer is very effective when treated with Chemo. I have posted the 3 drugs he is receiving, should you want to read that post as well. Happy to speak with you if you like.

@popkorhn- I am sorry that I have been away. I had a scary bout of very bad vertigo. I'm much better now but waiting to see a specialist for this. Now that the room has stopped twirling I can type!
Fatigue is a BIG problem and side effect of many cancer treatments and I know that you know this. It must be great that he has no other side effects, so far as this writing.
It might be a great idea to get him outside and walk for a bit- or until he wants to rest. How is his appetite?

After his first round of Chemo for 3 days, there has been no side effects at all. He had an anti nausea medication drip with his first treatment. He still has a Great Appetite and he exercises 5 days a week , playing pickleball or golfing. We are waiting for the fatigue to appear but so far so good. Three more rounds of treatment to see where we are. If the treatment is not working, then we will seek a second opinion. We are just seeking Out any other Small cell lung cancer treatment alternatives at this point. I have not seen any alternatives thus far.

I am good .we both play pickleball together 5 days a week. Hopefully this treatment will work for him. So far so good. We just want another option, should this treatment not be successful to hold this aggressive cancer at bay. Hopefully all will go well .

Happy you have joined, lady. I am Stage IV now with nodes and spots on my liver. Brain MRI was clear, so far. If the doctors had listened to me for months, maybe this would have been caught sooner. I haven't even seen an Oncologist yet! Praying we can all beat it. Were you sick from the treatments and where were you treated? Since this is a Mayo discussion board, I assume there.

Happy you have joined, lady. I am Stage IV now with nodes and spots on my liver. Brain MRI was clear, so far. If the doctors had listened to me for months, maybe this would have been caught sooner. I haven't even seen an Oncologist yet! Praying we can all beat it. Were you sick from the treatments and where were you treated? Since this is a Mayo discussion board, I assume there.

Margo, my husband was just diagnosed with small cell lung cancer which has spread to his liver and bladder. The diagnosis is poor, yet with new treatments, keeping it at bay and living with it is increasingly possible. They found his secondary tumor in the liver before Christmas and the primary lung mass on January 6th. Luckily we live in Tampa Florida and He decided to be treated at Moffitt by a small cell Thoracic specialist, Dr Alberto Chiappori who is doing a clinical trial For small cell endocrine Lung cancer study . He saw my husband and started him on a 3 cocktail Chemo and immunotherapy treatment immediately. Pop had his first treatment January 15th,16th and 17th. So far he has had NO side effects, yet fatigue often happens this second week.
We have been told that This type of cancer is very effective when treated with Chemo. I have posted the 3 drugs he is receiving, should you want to read that post as well. Happy to speak with you if you like.

Margo, My husband was diagnosed with Small Cell cancer that has metastasized to his liver with a clear Brain scan thus far. He started his first round of Chemo and immunotherapy therapy last week with no side effects at all. Praying that more trials will produce a cure, while hoping to keep his cancer at bay until a cure is found. Happy to share his 3 chemo drug/immuno cocktail info if you like.

It's very scary when someone tells you that you may at the most have 3 months to live without treatment and a year with. And it's so hard to get anything done. We have fought to move up days and pre approve things with the insurance. It's scary.