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Diagnosed with pseudomonas aeruginosa infection in my lungs
MAC & Bronchiectasis | Last Active: Jun 27 9:33pm | Replies (85)Comment receiving replies
@rits You have pseudomonas and you are looking for treatment information.
You will notice that I moved your question, "Treatment for pseudomonas" into a discussion where members are already discussing this topic. I did this so you could more quickly connect in order to have your questions answered. I encourage you to scroll back through the comments to find previously shared suggestions as well.
May I ask if you have considered getting a second opinion to see if their treatment recommendations are similar?
Replies to "@rits You have pseudomonas and you are looking for treatment information. You will notice that I..."
It took me forever to find this and I wondered and wondered why it wasn't posted so I'm glad that I finally found your post. I had to go into my profile to see if I actually wrote and posted or was losing my mind. Lol.
As I said I did search and found the previous replies but I didn't find them helpful or I wouldn't have posted. I know what the treatments are and I am fortunate to being able to be treated by a top expert in the field of lung organisms, Pamela McShane at Tyler, Tx. She got rid of my MAC in 2 months and we have an amazing rapport. My general pulmonogist at the U of Chicago defers to Dr McShane re bacteria. But thanks for the suggestion.
What I was looking for was input from other patients, e.g. Terri, who recently stopped treatment which she took for years due to side effects.
All is good. I will discuss it with Dr McShane in a few weeks and ask her why she doesn't want to treat immediately which is what she did with MAC.
Erika, I've posted my question again in the MAC group. I don't follow this group and I don't believe that the people I am trying to reach belong here either. It took me 3 days to find my message and I didn't get the response I had hoped to receive, Please leave it in MAC. Thanks and happy new year.
I have had my ID doctor go completely silent when I asked his opinion on use of an herbal lung tincture. That was in June. After that I wanted a second opinion but all the ID doctors here trained at the same University Medical School.
I feel now I need to move but that is a huge task I can't do
Perhaps someone here can let me know what treatments all of yall have access too.
I am worried I will die long before I would if my physician were available and willing to talk with me openly.
I find putting new post with very old ones confusing. Would it be possible to just provide the new poster a link to those threads, but leave their question up? I’ll be reading (and maybe replying to) a post listed as 12 hours ago when I realize some responses are from 2-3 years ago. I am better at looking at date now than when I joined and I may be only one it trips up.
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Hi Erika...there are many of us that also have MAC and bronchiectasis and get pseudo,and dialogue about it in this group....are you keeping in both groups then?