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CLL - Referral to CLL Specialist

Blood Cancers & Disorders | Last Active: Oct 13, 2019 | Replies (16)
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@jvertalka

I have CLL, and have gotten monthly infusions of immunoglobulin (IVIG) for 2 years. This has made a tremendous difference in my health, as prior to these infusions I had continuous respiratory infections. Now my local infusion center tells me there is a shortage of the drug, and they cancelled my infusion. Has anyone else encountered this, and if so, how have you handled it?

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Replies to "I have CLL, and have gotten monthly infusions of immunoglobulin (IVIG) for 2 years. This has..."
Lisa Lucier, Moderator | @lisalucier | Jul 14, 2019

Hi, @jvertalka - I can imagine it would be very unpleasant news to suddenly have your infusions of the immunoglobulin (IVIG) you've been on for 2 years suddenly cancelled due to a shortage reported by the infusion center, especially as they have made a tremendous difference in your health.

I wanted to let you know that I moved your post about shortage of immunoglobulin into this existing discussion where other members are talking about chronic lymphocytic leukemia‎ (CLL) so you can connect with others who have this disease or another form of leukemia and may have encountered a similar situation. Hoping that members like @bflattenor @81ue @lesliem7600 @oceantroll @pokeyspride2002 @ssid @dougmann @robbhiller will join in and offer input on the shortage, the cancellation of the infusion and how to handle this situation. @1nan also may have some thoughts.

What has your hematologist recommended you do with your treatment at this point, in light of the shortage you encountered, jvertalka?

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