← Return to CLL - Referral to CLL Specialist
DiscussionCLL - Referral to CLL Specialist
Blood Cancers & Disorders | Last Active: Oct 13, 2019 | Replies (16)Comment receiving replies
Replies to "I have CLL, and have gotten monthly infusions of immunoglobulin (IVIG) for 2 years. This has..."
Hi, @jvertalka - I can imagine it would be very unpleasant news to suddenly have your infusions of the immunoglobulin (IVIG) you've been on for 2 years suddenly cancelled due to a shortage reported by the infusion center, especially as they have made a tremendous difference in your health.
I wanted to let you know that I moved your post about shortage of immunoglobulin into this existing discussion where other members are talking about chronic lymphocytic leukemia (CLL) so you can connect with others who have this disease or another form of leukemia and may have encountered a similar situation. Hoping that members like @bflattenor @81ue @lesliem7600 @oceantroll @pokeyspride2002 @ssid @dougmann @robbhiller will join in and offer input on the shortage, the cancellation of the infusion and how to handle this situation. @1nan also may have some thoughts.
What has your hematologist recommended you do with your treatment at this point, in light of the shortage you encountered, jvertalka?