neuropathy

thanks for the reply. I've had it in my feet for 30 years. Was controlled with different meds but starting last year they don't work anymore or create havoc(Lyrica, Cymbalta). New pain doc suggested 5% lidocaine cream: useless. Recently started CBD tincture which is expensive. Helps somewhat. Still too painful to walk, but at least it seems to prevent the burning pain. There is no accepted dosage. One article I read "2mg was effective for one person, but another was taking 2,000!! As an example of how primitive this field is, the author didn't even say if the 2,000 was effective. Plus I pay $50 for 1000mg, which means that person was spending $100/day. I don't believe that. Can't tell you how many cc's I'm taking, because Have not figured out how many cc's in a dropper. but I'm working one this. Will post this, hopefully, within a within 1-2 weeks when I have used the whole bottle

Been using the products for a while now,effective for moderate pain and burning but nothing significant after that and yes it’s expensive!

Peggy,I really can relate to your post,leave almost my entire body involved in some form of poly neuropathy. It is driving me oof the wall! Doc has tried different meds, can’t seem to control all my symptoms. I am really disheartened because my intestines,liver,and digestive problems have now become serious. Well just thought I would try and communicate with you. Thanks

Hi, Larry. I’m so sorry about your suffering. It does drive you crazy, doesn’t it? I was on an intrathecal pain pump for 10 years with morphine, then snail venom and last was dilaudid. Before that I used the fentanyl patch, hydrocodone, tramadol, you name it. For me personally, I found that narcotics didn’t help. They just zombied me out. My pain management doctor was also trying to treat the pain in my spine from degenerative disc disease. Eventually, nothing worked for either as far as narcotics go, so I don’t take anything for pain. It tore up my stomach from decades of meds so unless I went back to the pain pump, I can’t tolerate oral narcotics after one or two doses. They cause severe stomach pain and vomiting. That creates an extra problem when I have surgeries.

I know a lot of people can’t tolerate Lyrica or gabapentin (Neurontin), but as an anti-seizure drug with an off-label use of helping nerve pain, it is the only thing that reduces the degree of burning. My feet still tingle all the time and I get intermittent sharp jolts like an electric shock. Have you tried higher doses of gabapentin? Although I don’t recommend it, at least not for a woman my size, the maximum dose of 3200 mg per day helped but was too much for me. It made me fall asleep in my food and I was afraid of drowning in my cereal or soup! LOL. Seriously though, it prevented me from driving for 10 years and I couldn’t carry on a conversation without nodding off, so I had them reduce the dose again and again until I am fully alert and can function well. I take 300 mg 2 to 3 times a day. I’m sure since you’ve had it so many years, you’ve tried everything. I am so sorry and will pray for you Larry.

Peggy