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cindyconstien (@cindyconstien)

No cause found for persistent pleural effusions

Lung Health | Last Active: Mar 8, 2021 | Replies (25)

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@cindyconstien

It is all so discouraging, but I am feeling better. I believe the Lupus treatment is working. The lymphedema is improving, as long as I take lasics, wear support hose and keep my feet up. I can do some outside work in moderate amounts, to much and the legs swell again. Breathing is ok as long as I don't push to hard and the humidity is low. Stairs and hills are problematic. The last blood work shows the Lupus markers are almost negligible. All other blood work and tests are unable to point to a cause.

Hang in there. Rob C.

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Replies to "It is all so discouraging, but I am feeling better. I believe the Lupus treatment is..."

Even if you don’t actually have Lupus, if treating you as if you do helps, that’s a good thing. I’m sorry to hear that you’re having difficulty getting the medication. I imagine some of that is due to it’s use on Covid patients. However, I use eye drops for my glaucoma that have become impossible to find over the last few months. I’m sure that particular medication is not in short supply due to the pandemic. More likely it’s because the manufacturer has decided that it’s not profitable enough.

I hope you continue to improve. Please post updates as you proceed on your health care journey.

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