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JoDee, there have been times when my meds (prograf) has been out of the prescribed range, and it has affected my brain. When this has occurred, I have an extremely difficult time focusing, am easily distracted, easily frustrated and moody. A few years ago at Christmas time, I could not tolerate the noise and commotion in the stores, and couldn't even pull my car into a parking space where I had 3 in a row to choose from. When I almost ignored a red light while out with husband, I decided to call my coordinator. She told me to get labs and prograf level checked, and sure enough my level had gone too high. My dosage was lowered, and the symptoms diminished. Of course, more labs followed.
I have learned to live with lists. I have learned to not even think about multitasking. I have learned that I must not make a quick decision because I need time to process the information. I have come to accept that I am easily confused when in a new situation. I don't risk driving in heavy traffic, or have music on, or carry on a conversation when I drive. My med levels have remain unchanged for 4 years.
I am happy that your husband is feeling ready to start back to work. I will be watching for updates .
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JoDee, thank you for the information I'm very new to the transplant community my heart transplant was 04/04/2021. I didn't know what was going on I was agitated, couldn't stand the loud noise, My prograf was just reduced but my Transplant Team, they're requesting a repeat lab this week due to my prograf levels. My magnesium has been up and down, hand cramps on some days out of control. So with each blood draw they are also checking my magnesium levels to be adjustments. The transplant has been a success, all of my echo's has been good and my prednisone has just been reduced. Many side effects from the prednisone; my biopsies has been all good as well, my problems came from the side effects from the medications a lot of nausea and vomiting. I appreciate any advice you may have!
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@rosemarya thank you so much for sharing your prograf med experiences. I have already had my prograf med bumped up. I found out today i may have a blocked duct and had an ultrasound and a CT Scan today . A stent may be required. I am so nervous and upset. I have been ubable to decorate this Christmas and i usually have the house done by end of Nov. I cant tolerate conversations and feel like such a Grinch. Maybe it is the prograf increase? Christmas shopping has been restricted to online. But...i havd a liver!!!