← Return to MDS and Neupogen

Discussion
jeremy88 (@jeremy88)

MDS and Neupogen

Blood Cancers & Disorders | Last Active: Mar 1, 2019 | Replies (7)

Comment receiving replies
@bradmm

We visited a specialist in San Antonio, Tx, and he raised her risk from low to moderate. Said it was based on a new formula. That set her back emotionally. We changed Onc's again because that one didn't seem to listen very well. He's a researcher and we were afraid that he was more interested in data than patients. That may have been unfair after just two visits but we now have one that's in the same city as where we live (short drive) and seems to listen and have compassion. Mind if I ask where your "mds expert at a center of excellence" was located?

Jump to this post


Replies to "We visited a specialist in San Antonio, Tx, and he raised her risk from low to..."

I live in Upstate NY and there is no MDS expert in my area. I drive 2.5hrs to New York City to see my MDS expert every 6 months. My next bone marrow biopsy is at my April 2019 visit. I am monitored monthly by a local hematologist.