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Afib with Rapid Ventricular Response

Heart Rhythm Conditions | Last Active: May 21, 2019 | Replies (30)

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@soliloquized

I haven't considered a 2nd opinion since I rely on my family doctor (an Internist) and a 2nd doctor, a Cardiologist that I've used before and that is in close contact with my family doctor. Apparently there's a study based on Rhythm vs Rate Control that's predicated on patients 65 or older. I heard the cardiologist point out to the family doctor that I still have a few years to go until I'm that age, that he considers my heart healthy, ejection fraction is 65% now and 65% a year ago, and both echo cardiograms were identical. But that's why I'm here, to learn more.

I saw two Electro Physiologists for a PVC issue in the past. The first said the source was likely X (can't remember the name) and easy to get to. The second had the nurse continue to take my EKG until she captured a PVC on every lead. Then the doctor took the EKG and went to his office. He came back and emphatically said the first doctor was wrong, rather sternly, saying it was in the Purkinje Fibres near the bottom of the heart, so it was complicated to get there for the ablation, but was possible. I decided to wait it out, he prescribed an anti-arrhythmic medication that I declined (it wasn't considered serious, I didn't want to tamper with stability) and he prescribed Acebutolol, which stopped the chronic PVCs in short order.

5 years ago, I'd never imagined living with the symptoms I have now, that the top of the heart can do it's own thing independent of the bottom. Sometimes it feels like a squirrel running around in there. But I'm asymptotic except that I can feel it.

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Replies to "I haven't considered a 2nd opinion since I rely on my family doctor (an Internist) and..."

Hi @soliloquized. I'm weighing in at the suggestion of Teresa @hopeful33250. I'm awestruck by the complexity of your symptoms and by how firm and calm you are in your relations with the medical professionals you have encountered. My own experience bears little resemblance to yours. I'm hypertensive from a genetic kidney defect that steals my potassium, so when I was diagnosed with A-fib four years ago, nobody seemed surprised (except me). My symptoms showed up almost exclusively on an EKG. I have no sense of irregular heartbeat except from watching a blood pressure meter or seeing an EKG report. My heart rate (about 58 bpm for years) rose modestly to about 70-75 bpm after I started medicating the A-fib with Carvedilol. We assume my A-fib changed my heart rate initially by +30-35 bpm and the Carvedilol pushed it down by half of that, winding up at 70-75 bpm. I'm also taking Coumadin as an anticoagulant, although it let me down one time last summer, and I suffered a "small stroke" that keeps me a little off-balance even now.

I hope you will be able to get your doctors to meld their analyses and further studies so that you have a stable vision of what's troubling your heart, and I hope you and your doctors reach a unanimous conclusion on steps to take. Compromises are not very satisfying, I know, but neither is treatment that seems like a set of trials. Do you have access to a university-based medical system or a noted clinic like Mayo where research- and patient-driven diagnosis and treatment are available? Martin