short back ground : been on synthroid or levothyroxin for over 15 years Was originally put on it by psychiatrist due to depression and low energy.
Fast forward to last summer. A year ago, I went to the Dr for my eye. It wasn't acting right,, seemed to be more closed. They said nothing was wrong. EVERY Dr appt I mentioned my eyes.. they were doing strange things. The answer was finally - to to the optometrist. SO, I went last week,, NOTHING wrong with my eyes. But, they are getting big. My friend said she doesn't like looking at them anymore. My eyes have always been the family joke - Terri and her squinty eyes. I ruin every photo!
About a month after that I was at my Dr's for shaking. Thyroid was off.. lowered dose, next visit,, thyroid was off... the other way.. BIG swing. she finally sent me to endocrinologist. she just kept lowering my dose as labs were off. Then, 1.5 weeks ago, I wake up with TERRIBLE shakes.. my BODY was shaking, not just my arms and legs. I was out of control. Very scary. Went to ER. At that time, we were not thinking thyroid as I JUST had a lab draw a week and a half before that and synthroid was lowered to 50 mg. Long story short... it was all Thyroid.. hyper.. all symptoms of hyper accelerated. Call to my endo. office in a bigger town said to stop taking my synthroid, labs were off.. ok,, wow. Stop!?? ok...

I have been really sick since then,, bad symptoms of hyper. And, I have been so stressed out, I blew my epidural I got last month... neck and shoulders back to pins and needles. Asked on another line,, and the answer back was :struma ovari - NEVER heard of this.
My Endo will not order any more labs, or tests until the synthroid is out of my body. ( I understand that). I am wondering IF I need to go to my primary and get my ovaries checked. 3 years ago they said I had fibroids... well,, wonder IF that was wrong... and it is this..?? also,, 2-3 years ago during a ultra sound for something else, they found a small nodule on my thyroid. Too small to worry about.. and I don't get another ultrasound for it till Aug.
And,, just to throw this out there: during physical therapy,in the last 2 weeks, when the therapist does ultrasound on the left side of my neck, I get a big reaction.. I cough, but the 'tickling' is not in my throat.. but on the side. Ultrasound does NOT do this on my right side.
Question is, do I go against my endo's 'orders' and get my ovaries checked by my primary?
Labs drawn are not complete thyroid labs,, just the basics.
Free T3 - 7.6 Free T4 - 2.1 TSH reflex to FT4 - 0

advice???? I am generally a patient person, but waiting 6 weeks is hard. today I finally had a good day - didn't feel 'sick', but still shook,, ( I'll take that)

I should also ad, that I have been thru an extreme amount of stress since Jan 9.