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← Return to Metastasized lung cancer
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@karen43- Good morning and welcome to Mayo Connect. I am a 22 year lung cancer survivor. I am very sorry that the treatment chosen for your cancer has not been successful so far. I have had SBRT, a type of focused radiation twice for my lungs and they were both successful. One was Proton Beam and the other was Photon Beam. I was very tired after, are you experiencing this also? It took 6 months for the fatigue to peak and then things got better. I really hope that the focused radiation has zapped your cancer for good! Do you know that name for it? You have a very rare form of lung cancer, one I am not familiar with. The type of cancer that I have is called multifocal adenocarcinoma. Simply put this means that I grow more than once cancer at a time. I have had cancer in both lungs and am also stage 4.
Have they treated your lungs successfully? How did they treat it? Please let me know how you are doing. Is your breathing difficult?
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22 years. Wow!!!! I wasn’t sure I’d see spring! I am very tired!....but I’m functioning! Everything is a chore! My legs are weak making walking difficult but doable. Right now I’m just waiting for results of last brain radiation. I am not a good candidate for chemo.....I have none of the genetic markers for focused chemo. At first I was told, there were many options because lung cancer is studied so much, then after all biopsies are studied ... nothing! My family is very supportive if I chose to not do the generalized chemo program. At this point, not getting positive feedback from medical staff either.....quality of life issues. Merry, you’ve had both chemo and radiation on Your lungs? I have had nothing to lungs....very slow growing and no c(angels since Jan. It’s the brain they are focused on. The involvement is with the cerebellum and the occipital lobe......which explains the leg involvement. The brain remains intact.....for which I am very greatful. Thanks for getting back to me
Karen