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It's been a year and a half, still undiagnosed. Need some help.
Autoimmune Diseases | Last Active: Feb 4, 2023 | Replies (18)Comment receiving replies
Hi, I'm Mish and I just found this link today while for the millionth time I again search for information concerning my Fibromyalgia diagnosis. It's funny, but I had no trouble obtaining a fibro diagnosis 8 years ago, but the treatment angle has been much tougher. I live in Alaska, and although providers here are sympathetic, the across-the-board belief in drug therapy is rampant. I am not drug seeking, but overall body pain, no sleep, headaches (migraine), back & shoulder pain, hand pain, depression, and hopelessness are wearing me down. I don't respond well to medications, so aside from a healthy lifestyle, what are my options? It is just a thought, but perhaps a visit to a provider outside of my state might help me really zero in on my complete health situation. I appreciate any ideas.
Replies to "Hi, I'm Mish and I just found this link today while for the millionth time I..."
Hello @mish, welcome to Mayo Clinic Connect. Thanks for sharing the beautiful photo...love Alaska. I have made two trips there and loved them both. One to Nome to volunteer at the KICY radio station and the other was a bucket list inland passage cruise, bus trip to Anchorage and a train to Fairbanks. I'm hoping to repeat that one someday. From visiting Nome and talking with some residents I understand the remoteness of getting treatments. I'm hoping you find some answers here and members can help with that by sharing what works with them.
There is another discussion which you might find helpful here:
Groups > Chronic Pain > Drug Help for Fibromyalgia and Related Disorders
-- https://connect.mayoclinic.org/discussion/drug-help-for-fibromyalgia-and-related-disorders/
You mentioned you don't respond well to medications. Have you ever done a genetics study? I recently did the Mayo Clinic GeneGuide and was impressed with how it's done and how they walk you through the test results.
-- https://www.mayoclinic.org/mayoclinic-geneguide
John
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@@mish what a beautiful picture is this from your porch?love the Mt,s I,ve had fibromyalgia since the 90,s Ive had all the known fibro meds none worked very well but I found a product ,all natural ,that works for me.It,s Fibro -Malic from Vitacost.com Ive been on it for years and out side of a flare up I can manage the discomfort at times but I also have O.A all through me and Dr gave me Meloxicam I take when I needed. Some other things that help Ice it,s a anti inflammatory ,Tens unit ,hot shower,Epsom Salt soak hope some of this is helpful to you