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← Return to Hypogammaglobulinemia
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Autoimmune Diseases | Last Active: Jul 22 7:40am | Replies (79)
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Hi @sassykitten93,
I’m tagging @dougmann and @miche as they’ve written about hypogammaglobulinemia in other discussions on Connect. Since CVID or common variable immunodeficiency could be a probable cause, I’m also tagging @ldestella @xfirerose @cbdonlon; I hope they will join in and have some more information for you. Have you already been seen by immunology? I’d really like to hear back from you.
Replies to "Hi @sassykitten93, I’m tagging @dougmann and @miche as they’ve written about hypogammaglobulinemia in other discussions on..."
I learned the hard way to tell the nurse that my IVIG drip does not go above 110. Above that, I had blinding migraines.
I have had to remind nurses many times over the years even though it was stipulated in my chart. It takes 4 hours but it is better than hurrying the dripmand having bad migraines.
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@kananab thank you for replying. I am currently being assessed at UCLA for a MAC infection of the lungs. They are also going to start treating me for my CVID. They think I may have more things going on in my lungs besides the MAC. I also have Bronchiectasis. They want to change me from IVIG to SCIG. We are having problems with that because there is a blood shortage. I am waiting for tests. I am having a hard time producing a sputum sample. Finally somewhere to find out more about CVID.