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New to Mayo: MEN1 with duodenum NET G1

Neuroendocrine Tumors (NETs) | Last Active: Oct 8, 2021 | Replies (15)

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@hopeful33250

Hello @markbrinkley
As I see that your appointments at Mayo started on the 17th I was just wondering how you were doing.
Have the Mayo NET specialists been able to give you a better understanding of the MEN1 with duodenum NET G1 diagnosis?

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Replies to "Hello @markbrinkley As I see that your appointments at Mayo started on the 17th I was..."

Took abit to get referred to NET team, as I started out in general GI. Got the tests ordered and accomplished to further investigation. Good news in that area effected is limited based on DOTATATE scan. Duodenum, pancreas and possible antrum stomach. EUS and pathology confirmed gastrinoma in duodenum (small 6mm) and pancreas with cluster of micro tumors (10mm). All in close proximity. Next stop is oncology to determine best approach. 1/11 is next appt due to holidays.