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Neuropathy started during a gout spell

Neuropathy | Last Active: Feb 24 9:08pm | Replies (31)

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@johnbishop

Hello @athenalee, I wasn't familiar with Tacrolimus but did see that some information supporting Tacrolimus induced neuropathy. Excerpt is from the article linked below.

"Peripheral neuropathy is rare but can be a severe side effect of tacrolimus. About 3 of 1000 patients develop severe multifocal demyelinating sensorimotor polyneuropathy 2–10 weeks after initiation of tacrolimus therapy. Dec 5, 2013" - Tacrolimus-induced encephalopathy and polyneuropathy in a renal transplant recipient: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3863021/

I think one question I might have - Is there another immunosuppression drug that would work the same or better than Tacrolimus to stop or prevent the neuropathy from getting worse? @rosemarya @gingerw and others may have some suggestions for questions you might want to ask your neurologist based on being a transplant patient.

You are definitely helping your condition by not drinking alcohol, not eating refined sugar and walking and exercising regularly - Kudos to you for that!

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Replies to "Hello @athenalee, I wasn't familiar with Tacrolimus but did see that some information supporting Tacrolimus induced..."

Thank you! There are a few medical journal articles on Tacrolimus and neuropathy. I’m hoping to find a neurologist who is aware of potential drug interactions. Tacrolimus is the most effective anti rejection med, but you’re right, I don’t want worsening neuropathy!