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@julie1976

Oh the reply I have. In 1988 I was 12 years old and diagnosed with Hodgekins Lymphoma. The best of the worst they said. I had mantle radiation. I guess things were so different then because that mantle radiation not only brought on cancer. Twice. Even more. First I had cardio myopathy, congestive heart failure. Pancreatitis . Then Breast cancer. I had a double mastectomy. We caught it in it's earliest stage but it was only going to become a problem (went through a long re construction that failed) Last year I asked my dr for a CT because of some symptoms I was having. It didn't happen . I asked my oncologist. They found a very large tumor(Meningioma) In January I had it removed. I'm 42. Pretty sure more is coming. The odds just say there is. So yeah there is some PTSD...some impending doom. I'm a positive person. All the medical issues were the best of the worst and caught early. I am just so thankful and grateful the tumor is out of my head! There will be side effects from brain surgery. Bring it. Seeing the picture they showed me of it...knowing it was there...waiting for surgery. The relief knowing it's gone. For me,catching it early. I'll be putting my foot down with my dr. Full body scan. Often. lol
I started painting a few years ago. Following tutorials on line for free.I'm good at it and I love it. I have done a few originals but I love learning and challenging myself and escaping thinking about what's next. I have a 23 year old son I raised on my own and I am so thankful for all the blessings and early detection.
I would love to find a way to find people who also had mantle radiation in 1988 or around that time....what should I also be checking and keeping an eye on. I don't want to obsess but to be wise. @merperb

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Replies to "Oh the reply I have. In 1988 I was 12 years old and diagnosed with Hodgekins..."

@julie1976, wow. Not sure how else to respond. I simply cannot imagine dealing with what you are managing so incredibly well. To think that radiation to treat childhood NHL can cause so many very serious multiple cancers and other conditions. But yours is not an isolated case. I will look for others who had mantle field radiation for non-Hodgkins lymphoma. Luckily this type of radiation treatment is rarely, if ever, used today.

I applaud your ability to remain a positive person and to be such a strong self-advocate. You know your body. We have a group of artists here on Connect who share about art and healing. I think you might like to also join this discussion:
> Just Want to Talk group > Art for Healing > https://connect.mayoclinic.org/discussion/art-for-healing/