What happens after C.Difficile?

Posted by dn22 @dn22, Dec 6, 2018

I got C.diff back in October (early to mid). I had taken clindamycin for BV and it didn't react well for me. I went into the ER for intense pain, bloating, and diarrhea. They found out I had a severe case of colitis, my entire bowel system was extremely inflamed. But they didn't know what type of colitis it was until my 3rd day there. Then they did the colonoscopy, endoscopy, and biopsy. So they treated me with antibiotics. Sent me home with more antibiotics. And after finishing them, and giving it a few days I felt better.

I was still more aware of my bowels, which is saying something since I have IBS already. But other than awareness, and maybe some tenderness in a way, it was normal. Then Thanksgiving came, and I ate what my family made. I had immediate diarrhea and pain. I thought it was the dairy, bc I forgot to start taking my IBS meds again. They had me stop taking them for awhile after being diagnosed with c.diff. Then I tried the food the next day, after taking my IBS meds. Same issues.

So I decided no more thanksgiving food. But the pain, bloating, twisting feeling, and pooping didn't stop. And I would get the urge, but when I went to go, it'd be a lot of gas, that was hard put to come up. When I would poop, the stool itself was very hard, and not a lot would come out.
My mother bought me stool softener. It made the stool less dry and sandpaper-like. But I still wasn't getting any relief.
So last Friday she gave me some of her Super Colon Cleanse (about 3/4-5/8 of a scoop/serving) mixed with Metamucil in a water bottle. And I drunk half the mixture. I still haven't stopped pooping. I'm pooping for hours again, just like with c.diff. No blood this time though. And the stool is pellet like.
I keep waking up to poop, or try to poop. I can't eat anything. Especially not carbs or dairy. I feel like I'm dying, but in a very different way than when I had c.diff.
I don't know what's happening. If I should go to the hospital or not. Or if c.diff has different symptoms the 2nd time around. Or if, because it was such a severe case, that my bowels were damaged somehow. I'm really just not all right, and idk what to do.

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dilly69 | @dilly69 | Dec 1, 2020

In reply to @5chances "I still have a slight burning when going." + (show)

I have changed my diet, little to no sugar and no alcohol. Fruit and veggies no.1

ngorman25 | @ngorman25 | Dec 2, 2020

In reply to @5chances "How soon did it come back after vanco? I’m a walking ball of nerves at 13..." + (show)

@5chances I had 4 relapses and each time it happened within 21 days of being off vancomycin. That's when I had the fmt done, about a year and a half ago. So far, so good!

dilly69 | @dilly69 | Dec 2, 2020

In reply to @ngorman25 "@5chances I had 4 relapses and each time it happened within 21 days of being off..." + (show)

Just wondering, heard you can take capsule or implant for fit???

dilly69 | @dilly69 | Dec 2, 2020

In reply to @dilly69 "Just wondering, heard you can take capsule or implant for fit???" + (show)

Fmt

dvdhoover | @dvdhoover | Dec 2, 2020

In reply to @5chances "How soon did it come back after vanco? I’m a walking ball of nerves at 13..." + (show)

You should read this article about C-diff.
https://www.sciencedaily.com/releases/2019/04/190423133613.htm

pines | @pines | Dec 2, 2020

In reply to @5chances "How soon did it come back after vanco? I’m a walking ball of nerves at 13..." + (show)

My first two relapses were about two weeks after finishing the RX. After the third relapse and doing the Vanco pulse and taper for 5 weeks, it was about three weeks before my 4th and last relapse. That's when I took Dificid which finally worked for me, along with taking Florastor every day. I went through six or seven months of C-diff hell in 2018 all from taking Clindamycin for a sinus infection. I don't think people realize how debilitating it is until you go through it. I'd never even heard of it until I got it. Our home had never been so clean trying to clean everything I might have touched and wondering why the bacteria/toxin kept returning.

dilly69 | @dilly69 | Dec 3, 2020

In reply to @dvdhoover "You should read this article about C-diff. https://www.sciencedaily.com/releases/2019/04/190423133613.htm" + (show)

Very interesting

cece55 | @cece55 | Dec 20, 2020

Hello Everyone....this is my first time on this site for C Diff. I post on the heart rhythm site for A Fib and the site for Sleep Apnea. I feel like I am falling apart!
I was diagnosed with C Diff four days ago and started on Vancomycin four times a day. I had a tooth pulled a month ago and was given Clindamycin. Lo and behold...look what happened. I thought once I took this antibiotic, I would be healed. It is so depressing to read and think that I am going to have relapse after relapse.

My question right now is: How do you tell the difference between the cramps you get as a side effect from the Vancomycin and the cramps you get from the C Diff? They are dull and painful and seem to come in waves. Curiously, when I lie down and go to sleep at night, I am fine and when I stand up I am fine. I researched what I can take for pain and keep reading to stay away from the NSAIDS. What do you do for pain?

Also, how do you know when you are healed? I have IBS also, and the symptoms are kind of the same. My GI at Mayo said I won't be retested because I will always be positive for C Diff. How do I know when I am just in an IBS flare?

Does anyone have any success stories about being cured with no relapse. That would really help me mentally.

Thank you for any thoughts and input. My other group members have always been so supportive and helpful.

Blessings....CeCe 55

pines | @pines | Dec 20, 2020

In reply to @cece55 "Hello Everyone....this is my first time on this site for C Diff. I post on the..." + (show)

I think they should take Clindamycin off the market. That's how I also ended up with C-diff after taking it for my third sinus infection. If Vancomycin doesn't work for you, please ask your doctor for Difficid. I know it's expensive but it's the med that worked for me after my 4th bout of C-diff in 2018. I've never been told that I will always test positive for C-diff. And be sure to start taking Florastor. My GI had me take it and it's a great probiotic for people who have or had C-diff or IBS. My heart goes out to you.