What happens after C.Difficile?

Posted by dn22 @dn22, Dec 6, 2018

I got C.diff back in October (early to mid). I had taken clindamycin for BV and it didn't react well for me. I went into the ER for intense pain, bloating, and diarrhea. They found out I had a severe case of colitis, my entire bowel system was extremely inflamed. But they didn't know what type of colitis it was until my 3rd day there. Then they did the colonoscopy, endoscopy, and biopsy. So they treated me with antibiotics. Sent me home with more antibiotics. And after finishing them, and giving it a few days I felt better.

I was still more aware of my bowels, which is saying something since I have IBS already. But other than awareness, and maybe some tenderness in a way, it was normal. Then Thanksgiving came, and I ate what my family made. I had immediate diarrhea and pain. I thought it was the dairy, bc I forgot to start taking my IBS meds again. They had me stop taking them for awhile after being diagnosed with c.diff. Then I tried the food the next day, after taking my IBS meds. Same issues.

So I decided no more thanksgiving food. But the pain, bloating, twisting feeling, and pooping didn't stop. And I would get the urge, but when I went to go, it'd be a lot of gas, that was hard put to come up. When I would poop, the stool itself was very hard, and not a lot would come out.
My mother bought me stool softener. It made the stool less dry and sandpaper-like. But I still wasn't getting any relief.
So last Friday she gave me some of her Super Colon Cleanse (about 3/4-5/8 of a scoop/serving) mixed with Metamucil in a water bottle. And I drunk half the mixture. I still haven't stopped pooping. I'm pooping for hours again, just like with c.diff. No blood this time though. And the stool is pellet like.
I keep waking up to poop, or try to poop. I can't eat anything. Especially not carbs or dairy. I feel like I'm dying, but in a very different way than when I had c.diff.
I don't know what's happening. If I should go to the hospital or not. Or if c.diff has different symptoms the 2nd time around. Or if, because it was such a severe case, that my bowels were damaged somehow. I'm really just not all right, and idk what to do.

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Hi, does anyone have a burn feeling after pooping, always seem to feel like l've got to go

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@guthealth

Not sure what the autoimmune/antiinflamatory diet is but I am following a gluten free, lactose free, low fructose and low carb/ low grain diet and it has worked wonders for me. I also take supplements like omega 3, L glutamine, quercetin, vitamin A, Vitamin D and Zinc. The idea is not to stay on this diet forever but to very slowly introduce new foods into the diet. I am on a Low FODMAP diet with low carbs. I saw improvement in ten days.

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I've had GI issues for years that are triggered by certain foods. The first time I ever noticed it was so many years ago but I'll always remember it. A simple apple. An apple a day is deadly for me. Trial and error has led me to follow a low FODMAP diet with remarkable results. I do not eat meat or dairy and have stopped with most all added sugar which has stopped all the stiffness I thought was just old age. I have had to figure out everything myself by listening to my own body and looking backward at my family history. My mother was gassy as long as I can remember and she was a very thin woman with a very distended belly and died that way, my father died of C-dif, my sis was recently diagnosed with celiac "accidentally" at her routine annual exam, no symptoms at all, which was confirmed with all the tests required and since it is hereditary, I am careful with that as well. I absolutely know I have the IBS-C issues and the lactose intolerance because I have tried countless times to pretend that I don't. I absolutely avoid problematic foods and I drink almond milk. My problem foods are mine and I don't let anyone tell me otherwise. I am the one suffering, here. Adjustment is a path and a welcome relief when relief is the result. Acceptance is the thing that is required. I have found that being as close to vegan as possible has led to the best physical quality of life. I never struggle with my weight at all which I have had to do my entire life. The fats are out of my life as well. Sure, stuff gets in because I am not rigid about it and I slip and suffer but it is so so worth it and YES, there is plenty of protein. That is the question I always get. Check the protein content of any vegetable or carbohydrate or fruit or nut. Meat is not the only thing with protein. We have been mislead. My husband and I read nutritionfacts.org Michael Gregor Md.'s website. He has blogs and videos that are life-changing. Everything he says is researched and factual. Anyone would be wise and would lose nothing by checking it out. His videos are on YouTube as well. He explains things in a scientific way and he is funny and interesting. There is a way out.

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https://nutritionfacts.org/video/toxic-megacolon-superbug/
My husband found this when he researched Dr. Gregor's website this morning. My father died after knee replacement but the C-Dif killed him.

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@dilly69

Hi, thanks for giving me hope!

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@dilly69 I,too, had cdiff 4 times in 2018-19. Dropped to 86 lbs. Still trying to gain! Anyway, the only thing that finally worked for me was the fmt (fecal microbiome transplant). Cdiff is the worst "bastard plague" (as my gastroenterologist doctor called it!)

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@ngorman25

@dilly69 I,too, had cdiff 4 times in 2018-19. Dropped to 86 lbs. Still trying to gain! Anyway, the only thing that finally worked for me was the fmt (fecal microbiome transplant). Cdiff is the worst "bastard plague" (as my gastroenterologist doctor called it!)

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Doc told me that's the last resort. Well:so far the 7 week weining off is working. The true test is when your off the vancomycin

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@dilly69

Doc told me that's the last resort. Well:so far the 7 week weining off is working. The true test is when your off the vancomycin

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@dilly69 I know. I was fine while on the vancomycin every time. If you have any questions, About 2 weeks later, it would return. I had the fmt the end of March, 2019 and so far, so good! If you have any questions, don't hesitate to ask.

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Thanks for your help. It really is scary when it keeps coming back. Did you have a burning feeling after going to the bathroom??

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I had cdiff 18 months ago from clindamycin. I thought I was dying. I lost 50 pounds in 2 more months. I was on vancomycin for 8 months. I finally turned a corner but I still have issues. I don’t eat red meat I take florastor and yet I feel like I am leaking rectally after I have a bowel movement and have blood on occasion when I wipe. I also have anxiety a lot. I had reflux before and took a pop which didn’t help with the cdiff because it is not for long term use but I was on for four years. Every day is a challenge and I am always having stomach issues. I hope someday I will have some sort of normalcy. I pray for all that. Are fighting this battle😓

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Lordy:l guess l'm lucky to not have it worse, on the third bout of CD l just wanted to die. Now, l can't eat any greasy food, chocolate or surgery things. Really makes you value your old days of being healthy.

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@dilly69

Lordy:l guess l'm lucky to not have it worse, on the third bout of CD l just wanted to die. Now, l can't eat any greasy food, chocolate or surgery things. Really makes you value your old days of being healthy.

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@dilly69 Remember, once you have had cdiff, it's very easy to get it again! The odds are not in your favor. Stay away from any antibiotics if possible! And always take probiotics.

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