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What happens after C.Difficile?
Digestive Health | Last Active: Oct 27, 2023 | Replies (165)Comment receiving replies
@losthope I certainly know what you're going through. I too took Clindamycin in April for a sinus infection. Two weeks later, I was diagnosed with Cdiff. I did 10 days of Flagyl. Five days after finishing the drug, Cdiff returned. I then did 10 days of Vancomycin. Again, within a week of finishing Vanco, Cdiff returned. I then did the Vanco pulse and taper for 5 weeks. I felt great for 3 weeks after finishing that round of Vanco. Then my 4th bout of Cdiff hit. It was the hardest and I lost 10 pounds in two weeks. My first stool sample came back negative so I had to wait another five days before we did another sample which was positive for Cdiff. Having FOUR bouts of this, I knew I had Cdiff even when the sample was negative. I then took the expensive med Dificid (fidaximycin). 20 pills for 10 days and the cost was almost $5,000. My copay was almost $1,000. Thankfully, there was a fund that paid part of my copay. I finished the Dificid on October 26th. So far, so good. And I knock on wood every time I say that. If Cdiff returns for a 5th time, I'll do the fecal transplant. I've looked in to Open Biome and doing the capsule form. The cost is $635. I haven't discussed this with my gastroenterologist and hope he would approve. I just pray that I'm on my way to good health. Are you doing the pulse and taper with vancomycin?
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What is pulse and taper I'm on number 6 C diff 5 * in 2021 I'm 75 years old and every time it's Vancomycin which I just did for six months I got off it I was fine two weeks later which is now I got the poops again and I'm back on the Vancomycin tomorrow I start the dificid for 10 days which I remember I had in the hospital last year that didn't work my mental state is in the toilet along with the poop I've had ulcerated colitis since 1970 and here we are I just now consider the transplant that's disgusting is that sounds to me my doctor told me yesterday no way he didn't even know where to do it or who does it I said I know more than you do because Mayo Clinic does it in Jacksonville Florida and I live in Tampa when it gets down to it I probably chicken out but I've had so many colonoscopies it probably wouldn't matter to me I'm just thankful I don't get the pain anymore but it does just squirt out of me I've lost 65 pounds since December 2020 you know I was a chubby bubby I had no problem eating but those days are over I'm keeping this weight off doctor says there is no other medicine for me I don't know if I should change doctors I've been with him for 6 years I think I probably said enough I got a lot of information from from Mayo I've always come to Mayo to educate myself but I just found out about this website a few days ago and I love it God bless you