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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)

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@colleenyoung

Hi @hope19, I moved your message to this existing discussion about Polycythemia Vera so that you can connect with fellow members @atir @clarissa37 @chadknudson @apr931 @mwear and @juiceinjc. I'd also like to tag @1nan on this disucssion as she may have some experience to share about blood work and changing values.

Hope, have you talked to your hematologist about the blood work results. It may not necessarily be a misdiagnosis but rather remission. Are you able to schedule an appointment or virtual consult or even contact through the patient portal if your hematologist has one?

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Replies to "Hi @hope19, I moved your message to this existing discussion about Polycythemia Vera so that you..."

I'm new to this group.
Dx w PV about a year and 1/2 ago. I am signed up to a portal to review my labs. Be nice to have others that are going thru same situations.