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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)

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@hope19

Good Morning, So, back in March I had a bone marrow biopsy and aspiration done and the results came back positive for Polycythemia Vera, I had a long discussion with my hamotologist and I felt comfortable going the phlebotomy route as opposed to the hydroxyurea route for initial treatment . She would have preferred I do the latter as a preventative measure for future thrombosis, ( I have CVST as well. ) but I said let's try the phlebotomies and if my hematocrit level and hemoglobin are consistently not good, I will consider the drug. To make a long story short, I've had 2 scheduled phlebotomies with 2 scheduled blood tests a week previous to each one and I've cancelled both as my blood work came back not needing one. My question now is, could I have been misdiagnosed?

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Replies to "Good Morning, So, back in March I had a bone marrow biopsy and aspiration done and..."

Hi @hope19, I moved your message to this existing discussion about Polycythemia Vera so that you can connect with fellow members @atir @clarissa37 @chadknudson @apr931 @mwear and @juiceinjc. I'd also like to tag @1nan on this disucssion as she may have some experience to share about blood work and changing values.

Hope, have you talked to your hematologist about the blood work results. It may not necessarily be a misdiagnosis but rather remission. Are you able to schedule an appointment or virtual consult or even contact through the patient portal if your hematologist has one?