Hello, I am currently looking for research for my mother and our family. She was diagnosed with Polycythemia Vera/PV in 2017. She thought she had an upper respiratory infection and went to the local urgent care. They informed her that her oxygen was at a 69 and she had hypoxia and was sent, and eventually admitted to the hospital. The next day after blood work was completed she was diagnosed. Since than she has been getting phlebotomies (sp?) approximately every 6 weeks. Her blood doctor and her regular doctor both have conflicting answers. One says she needs oxygen at night and the other says as needed. They have not done many tests to determine the cause of this, nor have they looked for the JK gene mutation. Is this not required for diagnosis purposes? Since then she has had a multitude of symptoms including a stroke. She often becomes very tired and unable to do much, then most of the time you wouldn't know anything is wrong with her.

She has noticed a difference between when she stops using her oxygen and when she continues. She is convinced that if she only uses it during her low oxygen times or when she starts to feel bad, they remove less blood. She plans on checking on this when she goes back to her hematologist on the 11th. Most of my problems are, when I find some information about the subject, my brother can find equal information disputing what I say. Can anyone please help me with a few questions? Is there any reputable information with vitamin c as they say it helps with lung function, and Vitiamin D3? I think I have found enough evidence as to "it can't hurt", but I also read where Vitamin K is a no-no as it raises iron levels and that is bad for PV, so I don't want to just add things that might not be as good as I think.

Sorry for the ramble, the internet is so confusing.

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