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DiscussionPolycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 21 hours ago | Replies (399)Comment receiving replies
Replies to "Hello, I am currently looking for research for my mother and our family. She was diagnosed..."
Hi, @clarissa37, and welcome to Mayo Clinic Connect. It sounds like your mom has been through a lot with this diagnosis and its symptoms, and then the stroke. I also agree with you that you can find information supporting - or quite the opposite - about anything you'd like on the internet.
Hoping that members here will provide you some support and solid assistance as you are looking to get some answers. Please meet @atir @chadknudson @apr931 @mwear @juiceinjc. They may have some experience with using oxygen and taking or deciding not to tak Vitamin C or D3.
Also, I thought you'd be interested in this Mayo Clinic information on polycythemia vera https://www.mayoclinic.org/diseases-conditions/polycythemia-vera/symptoms-causes/syc-20355850.
Did the doctors explain the why behind their recommendations of "as needed" or "nightly" for using oxygen?