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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (492)

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@simple27 I took my promethease jak2 variant information with me to my Dr appointment. I’m showing three areas of increased risk. I’m now waiting for Jak2 lab results. Blood was drawn last Thursday (feb14) at Mayo, any idea on the turn around time for results there?

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Replies to "@simple27 I took my promethease jak2 variant information with me to my Dr appointment. I’m showing..."

For everyone’s info, I messaged through the patient portal and was told up to 10 days for Jak2 results. But the nurse suggested I check in at 7 days in case it is available. Wonder why it takes so long.

@thlas1971 Hi there! Sorry for the late reply. I uploaded my 23 and Me raw data onto livewello and these are my JAK2 results...

@thli'm being cared for in a major academic institution which if I named it, it would garner instant respect..After mine was drawn it seems many weeks with no word..Then I had an appointment with my primary Doctor and she asked if ii wanted to know the results..Of course I said yes..It was positive...my hematologist didn't want to hear my questioning their delaying short, keep asking.