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DiscussionPolycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)Comment receiving replies
Replies to "I've had PV for three years and do phlebotomies generally about once a month. In discussion..."
Hi this post is almost 3 years old do you have any updates? I found out I have pv this year and feel my story is close to yours aside me trying the Keto diet. Tia
Do people generally feel their symptoms improve/feel better after a phlebotomy?
Hello, I read you do your phlebotomies about once a month? Are you taking Hydroxyurea also? I currently am and it does lower my platelets substantially. I also noticed that after a phlebotomy, my platelets seem to drop about 100 pts? My doctor has the same expectations, Hematocrit at 45 and platelets below 600. I’m newly diagnosed and they are still trying to figure out dosage etc.
Thanks Chad, my threshold is 45 as well. I maintain a very healthy diet as well. I am very fortunate to have a wife that is a RN and yes she stays on my A$$ daily about my intake and exercise. I try to do everything as right as I can but nothing seems to work. There has been a lot of talk with my Drs about starting the Hydroxyurea and I am fine with that. I am just getting a little tired of the wait and see approach as well as all the phlebotomies. I guess I'm also looking for other avenues of therapy. The last thing I want is to throw another clot.