Hello @karmagirl, welcome to Mayo Clinic Connect. You are not alone and I'm glad you are advocating for yourself by asking questions and searching for answers. There are several discussions here on Connect that you might be interested in reading through to find other members with similar symptoms:

Groups > Women's Health > Chronic Illnesses of Millions of Women Left Untreated
-- https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

Groups > Autoimmune Diseases > Desperately Trying to Get Diagnosed
-- https://connect.mayoclinic.org/discussion/desperately-trying-to-get-diagnosed/

@karmagirl I’m not sure if it is an option for you but if it is, the Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here: https://www.mayoclinic.org/appointments

John