Disk replacement & spinal fusion (L4-L5): Post-op concerns

@user_chf56161a
Hi!
So sorry you are having so much pain! I certainly feel it for you, too.
I had an X-Lift fusion of L3/L4 and I am 12 weeks post-op.I also had disc replacement on C5/C6 at the end of February.
T suregery was done as an outpatient. In at 7:30am and out by 1:00pm. The disc replacement went swimmingly. I healed very quickly and I was off all meds within a couple of days. After 1 month, I healed so quickly that the doctor had me start PT (which was sooner than most). We worked on getting my range of motion back. I have, although I shouldn't hyper-extend it or turn my head quickly.
After that, I thought the X-Lift would be about the same. Boy, was I wrong. This surgery required me to stay in the hospital over night. My surgery was not as long as yours. Mine took less than 2 hours from start to finish. I was uncomfortable when I woke up. The pain drugs were great. Honestly, I really don't remember anything other than being in the operating room as they prepped me and meeting with the hospital OT, who showed me how to get out of bed and how to use the walker.
When I got home without the hospital-type meds, I had pain from hell (pardon my language). Not only did my back hurt but my left thigh hurt as well. That has to do with the doctor moving and cutting a muscle on my left side during the surgery. I also had terrible spasms for which I took meds, too. I could not lay down in bed and I slep in my trusty recliner for about a week. I could not sleep in my bed because my mattress is too firm and too high for me to get up on. Thank goodness I have a spare bedroom with softer mattress which is lower and easier to get on to. Going to the bathroom was difficult for 2 reasons. Getting on and off.....ouch, and the pressure on my thighs (while sitting) caused terrible spasms in my legs. Let's talk about blowing your nose or coughing...another big ouch, again down my legs. I also got a grabber to help pick up things around me.
I am very fortunate to have a VERY helpful and caring husband!! He was and is here to take care of me. I could barely make it to important areas of my home. It could take me 10 minutes just to walk to the bathroom (right across from the room I slept in). I couldn't stand to brush my teeth. Mouthwash? Forget that! I was lucky just to brush. Then of course, showers. Luckily, I have a free standing shower. Before my surgery, we put grab bars in the shower because I already had 3 falls. They have been a great aid. As for drying myself, I couldn't....in came hubby.
My biggest concern was the opiods I was taking. I am NOT a pain killer type of girl. Before this, I rarely took pain meds. I had weight loss surgery so my large dose Iburprophen is a no-no. I was afriad to take the pain meds for fear of addiciton so I only took the pain med when the pain became too much. Waiting was wrong because I couldn't get ahead of the pain. So, I started taking the pill as prescribed, every 4 hours. The meds did work fairly well. After a week, I called my surgeon because I still needed the pain meds but again, my fear of addiction took hold. With the help of the doc, we worked on a weaning schedule that worked great.
OK, enough about that. As I said, I am 12 weeks post-op. I still wear my back brace and will continue to do so until I see my neurosurgeon mid-December. I have not been cleared to drive, and I still sleep on the softer mattress. Sadly, during all this, I re-developed an issue in my left knee. It is probably a combination of the muscle cut during surgery and my very bad walking gait. I barely walked for months because of my horrible pain before surgery, leaving my legs VERY weak. At my 8 week post-op, my surgeon said no more walking aids (not even my cane). As far as pain, my right side is pain free except for my hip (again, probably because of the way I've been walking). My left side is greatly improved, too, except for the pain in my knee. Getting out of bed in the morning is difficult. Some days I can hardly move. I've started taking 2 fast acting Tylenol before I get out of bed, it helps. After I get up and wash, I get into my chair and use an ice pack on my left leg. It take me around an hour before I can get up and start my day. TODAY IS THE FIRST DAY i DIDN'T HAVE PAIN AND DIDN'T HAVE TO USE AN ICE PACK. I do not know if it was just a one day thing, but that is OK.. Sitting on the toilet is still difficult. I still get terrible spasms in my legs and back. However, as soon as I get up they are gone. My doc said it is normal.
I have found (as the surgeon said I would), that the more I walk, the less discomfort I have. I RARELY have the horrible pain. In spite of what the doc said, I cannot walk very far without holding on. This is NOT just because of the surgery, it is because of the weakness of my legs. I am sure that at my next visit I will be told to go for PT. I PROMISE IT DOES GET BETTER!!! YOU NEED LOTS OF PATIENCE!!! BELIEVE ME, I CRIED SEVERAL TIMES TO MY HUBBY BECAUSE I THOUGHT THE PAIN WOULD NEVER GO AWAY AND THIS SURGERY WAS A MISTAKE. I know the surgery WAS NOT a mistake, it was just my frustration on how long it took to feel any relief.
I am sorry to be so long, but so often we think we are the only ones experiencing these things or that we are loosing our minds.
Everyone has a different experience and recouperation from this surgery.

I hope this helps you!
Ronnie (GRANDMAr)

Thank you Grandma

@user_cha197c94
You are welcome!
As far as a walker, you are no where ready to do without it. It can take several weeks if not more than a month. Lots will depend on how you are doing and how confident you feel. I would not do anything without the walker until you see your surgeon again and get his/her opinion. And then, I'd start going without a walking aid in the house only and then only when you can walk near a piece of furniture or wall to grasp on to, if needed.
You'll get there, I promise...it's like overnight you all of a sudden you realize you don't need your pain meds on a regular basis, then you realize getting out of bed or using the bathroom is not as difficult or painful as it once was, then you are walking around the house without a walker, then walking outside without a walker (but make sure to have someone to walk with, you will probably need to hold on to them at the beginning then when you are walking across the street, a parking lot or hill.), then you realize that the more you walk, the less pain you have........It's all a process that takes time! Your back is pissed off at you. It already hurt, the muscles and nerves. Now, you had the audacity to have surgery and allow someone to dig around your spine.....shame on you! lol
Again, I PROMISE IT WILL GET BETTER!!!!!
Ronnie (GRANDMAr)

@user_chf56161a
I am sorry but I disagree with the other member regarding a walking aid for a few reasons..
1. When I was in the hospital, I recieved OT & PT. They both suggested that I continue with a walker until my 6 or 8 week f/u.
2. Your legs are weak and in pain. As a result you probably don't have good balance. The LAST thing you want to do is fall. Falling could be DISASTROUS. This has been pounded into my head.
3. Walking IS the best! My doc said 3 times a day up to 15 min. I started at 5 minutes in my house. When I walkeed in the house I did not use an aid. But I did walk near furniture or a wall just in case.
I am just sharing my experience.
As far as pain meds, each state is different. I live on Florida. I was given enough meds to get thrpugh to my first post op. I was then given enogh for the next 2 weeks . By then I was reducing how often I took it since I wasn't able to get any more. So check. And DON'T let the pain get ahead of you. When you do, you need pain meds more often because it usually does not help as well.
Ronnie (GRANDMAr)

I’m keeping using the walker, I got dizzy last night and was glad it was there. I’m seeing regular Dr today for wound check. I’m going to ask for 2 weeks more of pain pills.

My new disk and fusion are 4 weeks along. I’ve had a lot of nerve pain but it’s getting better.
My question is I hear a loud clunk in my hip when I walk. Have any of you had this? Advice please.

I had a spinal fusion back in 1997 L5S1. The surgery went wonderfully. No pain, back to myself in no time. No hip pain or noises. Now 2018, I have many changes in fusion area, arthritis, peripheral neuropathy, have had facet blocks, radioactive ablation injection, pills for peripheral neuropathy. The fusion, as related to me by another back surgeon, told me it is only good for 10 years. Not sorry I did, had 10+ good active years. Now, is another story. Horrific pain in back, going to pain management center. My advice, dont overdo it NOW or for a long time, dont carry anything heavy, twist, bending..........and you should be good to go for years. I felt so good I did everything I shouldn't have. Shoveled snow, carried heavy grocery bags, mowed grass, moved many times by myself. PLEASE, listen, and treat your back as it were a baby. I am in chronic pain every day.

@user_chf56161a I wanted to respond to your concern about your 10 days supply of pain meds running out...just call your surgeon's office, if you feel that you can't manage with over the counter meds. I'm sure they gave you a 10 day supply as a safe starting place. I will tell you this...don't panic! There is nothing worse than having pain and panicking that you will have to endure it, without any defense. Just make the call. If they expected that you would be pain free and only on otc meds and that's not the case, you should probably be seen, or call your PC. I really don't think you'll have a problem, tho'. The other thing, walking... do it! Don't worry about how far you go, only that you DO go! I have to agree with your doc about having a "crutch" when you walk. You'll make much more progress if you don't use an aid while your walking. If you feel unsteady and that concerns you, use a walking stick (from the woods :D), just to give yourself a sense of security, but not something that you can really put your weight on. You are over the worst of it and now you just need to trust that with a little push, you'll get your strength back and be better than you were. Hang in there...it feels like such a slow process, but you'll see that if you just demand of yourself all that you CAN do, you'll be able to do a little more every day. Here's a plan idea: Just promise yourself that you'll walk five days this week...that's it...just the five days. After that five days, you can decide whether you feel any better and what you want to commit to for the next week. Just keep your weekly commitment and be proud of yourself for pushing through. It won't be long before you find it much easier, you feel better and in more control of your own body, again. Best of luck! You can do this!!!