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Deep Brain Stimulation (DBS) for Parkinson's

Parkinson's Disease | Last Active: Oct 6, 2023 | Replies (70)

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@maxaz1

Thank you, @hopeful33250. I just want to clarify briefly - Walt's Mayo neurosurgeon indicated that he would likely, after the 3-month healing period, be able and willing to re-implant the DBS system. Billing and Medicare issues, as well as my distaste for one nurse, guided our decision to change medical practice.

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Replies to "Thank you, @hopeful33250. I just want to clarify briefly - Walt's Mayo neurosurgeon indicated that he..."

@maxaz1 - I'm terribly sorry to hear that after Walt was doing so much better after the implantation of the deep brain stimulation (DBS) system, the metal started to protrude out of his skull and he had to have it removed. I'm glad you will be able to have it re-implanted. Understandable, due to the billing and Medicare issues, and all the paperwork and recordkeeping you've had to do, that you will be having it done at another medical facility. I've also had times when I moved providers due to feeling like I didn't mesh well with someone on the medical team or that we didn't see eye to eye somehow, and I wasn't completely comfortable.

For the benefit of all those following this discussion, @maxaz1, I hope that you will continue to journal Walt's experiences as you journey into having this reimplantation done, the recovery and how things go for him afterward. It's also very useful to hear about your experiences as his spouse and supporter through all of this.

How is Walt taking all of this? Has he been discouraged with having more symptoms again after the device was removed?

@maxaz1 Yes, I understand. The billing issues are certainly a major headache and the paperwork is quite a task when you add the other factors of surgeries and health issues.

I wish you both well.