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Deep Brain Stimulation (DBS) for Parkinson's

Parkinson's Disease | Last Active: Oct 6, 2023 | Replies (70)

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@alistair01

Maxine, yes so many thanks. We wish Walt and yourself all good luck and follow with interest. And Susan, I am a similar age, diagnosed 12 mo ago, symptoms a\re principally a shaky left arm, some twitches elsewhere, balance not quite what it was but still cycling & some tennis. I don't know if this is right but my instincts are to manage as far as I can without Levodopa etc. Principally to postpone the side effects but also perhaps if its efficacy is limited to 'a period', better for it to start later than sooner. Of course treatments may improve too.

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Replies to "Maxine, yes so many thanks. We wish Walt and yourself all good luck and follow with..."

Hi Alistair. Thanks for your input! As I say, my neurologist told me that I am at a very early stage of PD. He had me weekly increasing the Sinemet. Was suppose to go up to 2 Tabs three times a day. Made it to two in AM, one and a half early afternoon and one and a half in the evening. I experienced growing nausea(bad) and a LOT of dizziness. Had to sit down for at least an hour. It was not fun. Anyway, when I called him he said it seemed that the dosage was going up too fast and he brought it down to 1 Tab three times a day. I have had WAY less nausea(crackers really help), dizziness and pain in my right arm. My symptoms also have pretty much disappeared. The worse thing before I took the Sinemet was the arm pain. It could be excruciating. Burning, twisting and achy feeling. I probably could handle the symptoms, but having to endure the pain would most likely put me over the edge. It was with me most of the time. I would LOVE to go off of the medication, but I am also fearful if I do that the pain will return. What you say about taking the Sinemet too early in one’s PD is definitely a question I will ask my neurologist when I see him in December. It seems like it might be the “lesser of two evils”. Many thanks for your input.