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Pain pump, I have one, how about one for you?
Chronic Pain | Last Active: May 4 11:25am | Replies (319)Comment receiving replies
I FORGOT TO ASK IF ANYONE HAS "ADHESIVE ARACHNOIDITIS" IT IS A CRONIC DEBILITATING PAIN THAT NEVER STOPS. LUMBAR SPINE. I HAD A SPINAL STENOSIS SO DR. SAID. WHEN HE OPERATED OR REPORT SAID IT WAS WORSE THAN HE EXPECTED SO HE DID A WIDE LAMINECTOMY REMOVING: S-1. L-2. L-3. L-4. L-5. NO FUSION. I WAS UNEDUCATED AT THE TIME. THAT STARTED MY ROAD TO TO ADHESIVE ARACHNOIDITIS SINCE SURGERY 2008, 2015 ANOTHER PROCEDURE, COULD NOT DRIVE ANYMORE. I CAN ONLY LEAVE MY HOME WITH MY HUSBAND. NEUROSURGEONS WHEN BACK SURGERY FAILES CALLS IT "FAILED BACK SURGERY" THIS IS "ONLY" MY EXPERIENCE!!!!!! THERE IS NO RESEARCH FOR PATIENTS LIKE ME. MEDICAL PROFESSIONALS NEVER HEARD OF THIS??? FOR THOSE WHO HAVE THE SAME THERE ARE MANY SITES HERE AND ABROAD TO SPEAK WITH FOR GUIDANCE. IF ANYONE HAS WHAT I DO PLEASE REPLY. THANK YOU.
Replies to "I FORGOT TO ASK IF ANYONE HAS "ADHESIVE ARACHNOIDITIS" IT IS A CRONIC DEBILITATING PAIN THAT..."
I havent heard of that disorder so it must be kind of rare because I was a neuro spine nurse and I research all the time and am in nurse practitioner school and we just covered the nervous system. I'm so sorry to hear about your suffering, I too am under the label "failed back surgery". Who the heck that had had their spine touched isn't under that umbrella? Haha sad face :/
Hello! My name is Angel. I have spinal Adhesive Arachnoiditis. It is a nonstop pain that is debilitating. I had a pain Dr that punctured my spinal cord and shot depo medrol into my spinal cord. After the puncture, they had to do a blood patch to stop the spinal leak. In the rush to so the blood patch, while transferring me onto a gurny, they dropped me and broke my back. This is 5 years of hell. There are no Dr's that even want to touch pain patients. We are discriminated against and left to suffer. This is inhumane and its all done to cover the butts of the Drs who harm their patients. God bless you! I pray that one day we can have some help. One day at a time sweet Jesus
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@kimspr3
Normally arachnoiditis is a condition caused by surgeries, injections, etc., a side affect I guess. I'm surprised that none of your doctors mentioned that to you. Do you mean you are unable to find anything that explains your condition or that doctors are not educated about it? I know arachnoiditis is rare and so are Tarlov cysts (perineural cysts) which is what I have. Don't give up. There has to be some doctors that specialize in your condition. I found only 3 neurosurgeons that specialize in my cysts. I live in Wisconsin and had to travel all the way to Dallas, TX. The worst thing you can do is settle for just being a chronic pain patient and thrown into pain management. Keep pushing and asking questions!!! Best of luck to you!