← Return to Autoimmune? Undiagnosed and don’t know where to go next

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@christina65

I have been sick since Age 3. Thought it was CF for 13 years then told no. Have antiphospholipid syndrome, extreme muscle pain in neck and shoulders and spreading through my body, lightheadedness, dizziness, extreme fatigue, light numbness throughout my whole left side. Doctors have no idea... Please help me. This has been 36 years of my life.

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Replies to "I have been sick since Age 3. Thought it was CF for 13 years then told..."

Hello @christina65, Welcome to Connect. I know it has to be hard for you having been sick for so long with all of the different symptoms and not being able to find a treatment that helps. There is another similar discussion where your post will receive more visibility and you will be able to meet other members with similar symptoms and learn from their experiences. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the following discussion:

> Groups > Autoimmune Diseases > Autoimmune? Undiagnosed and don’t know where to go next
-- https://connect.mayoclinic.org/discussion/undiagnosed-and-dont-know-where-to-go-next/

There is also another discussion you may be interested in that shares many of the symptoms you listed.

> Groups > Women's Health > Chronic Illnesses of Millions of Women Left Untreated
-- https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

Have you thought about getting a second opinion from a major teaching hospital or the Mayo Clinic? Mayo Clinic is really good at diagnosing hard to diagnose health conditions. If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

I was told about looking into Mayo Clinic and they may be able to help me. I live in pardeeville Wisconsin and have a family, and job so I would have to make sure I get everything done when I'm there during that time. I don't know if that's even possible?...

Yes, I should be hearing back from my primary on the 16th and will be seeing a Rheumatologist on the 24th of this month. I will metion this to them.
Thank you, Christina