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Autoimmune? Undiagnosed and don’t know where to go next
Autoimmune Diseases | Last Active: Apr 15, 2020 | Replies (158)Comment receiving replies
Heather Please know you are not alone! I know how the doctors treated me for the last year and a half! When I got upset and one of my neurologist he told me to take my file and go out of state! I'm in the same financial sitition you are in. I have dear friends in Phoenix who have told me to come stay with them and go to Mayo! But I can't afford it! I've given up on trying to prove it is Lyme Disease! There is no Cure!
But I have not given up on Life!
As I said before this has been the hardest year and a half I have had in 73 years.
I've had to give up on many things that brought me pleasure! Fishing, Golf, Sking to name a few! I work each day at giving Love and Freidship to everyone I come in contact with! The clerk at Office Depot today who couldn't get the register to spit out my recipet! Her name was Kayume! We talked about her and how her day was! Talked to the Special Lady who is my Silver Sneakers Yoga Instructor, she has a Special class for people like us for Balance! She invited me to her class in the morning.
I am a firm beliver that we are given Special Gifts that are meant to be! It depends how we listen and approach them. That is where I am now! I know how frustrated, confused and helpless you must feel! I have gone through it for the last year and a half!
As I said last night the Best thing you can do is to do what you are doing! Research, Research, and Research! You have found this site which has saved my Life! But there are many others and many people who can tell you what worked for them. Trail and Error on your part!
Please understand I am not being Negative!
I have learned that I am the only one who can help ME!
Learning to understand your limitations is #1! I cross that Red Line many times! When I do I know how I am going to feel and how I will suffer! But then it is up to me to put things back in order!
Most of this comes with age and trials!
My warmest Heart and Blessings go out to you!
I wish We had a Magic Wand we could wave and this would all go away!
My Thoughts and Blessings go out to you 100 fold!
Sundance(RB)
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Thank you for your words of encouragement and empathy. I am going to tackle one day at a time. Today it was a minute at a time getting to and during an MRI, then 5 minutes, an hour, until it got better. I know better days will come. I will keep researching. I found a company that does an extensive lyme test, dna connexions, expensive, but the most reputable this far in my search. I am feeling my way along, thank you for making my day a little brighter and hopeful. Blessings right back to you! Hope you have a restful evening.