← Return to Autoimmune? Undiagnosed and don’t know where to go next

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@johnbishop

Hi @beanie300, welcome to Connect. I am sorry that you are going through so much at such a young age. There is a post I would like to share with you in the Women's Health Group by @predictable.

Groups > Women's Health > Chronic Illnesses of Millions of Women Left Untreated
-- https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

The above post is the story of Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome. She also has a TED Talk - What happens when you have a disease doctors can't diagnose
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

I’m not sure if it is an option for you but if it is, the Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: https://www.mayoclinic.org/appointments

@beanie300 are you currently taking any medications?

John

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Replies to "Hi @beanie300, welcome to Connect. I am sorry that you are going through so much at..."

@johnbishop thank you for these resources. It is an option but my insurance will only cover it if my doctor sends me there. He was actually going to send me to the MN clinic for my POTS testing but they couldn’t see me for 6 months so my doctor sent me elsewhere instead.

I am on medications. I am currently on Bupropion for anxiety, Fluoxetine for depression, (been on both of those since about 16 so I am fairly certain they aren’t the cause of fatigue), Ranitidine and Cetirizine (antihistamines to help counteract the dermatographia and hives), and Hydroxyzine as needed to help supliment the other antihistamines. I only take that one like once or twice a month though when I am breaking out really bad.