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DiscussionWhat did you find most surprising once you were out of the ICU?
Intensive Care (ICU) | Last Active: Dec 16, 2021 | Replies (107)Comment receiving replies
Replies to "I am new to this community and to connecting with others who have survived the ICU...."
Welcome, @alex12119. I appreciate your advocacy with respect to PICS. More people and professionals need to understand its short and long-term impacts of people's lives. You may also be interested in these discussions:
- Post ICU Nightmares / Hallucinations https://connect.mayoclinic.org/discussion/nightmares-hallucinations/
- Post-Intensive Care Syndrome (PICS) - Let's talk https://connect.mayoclinic.org/discussion/post-intensive-care-syndrome-pics-lets-talk/
How long ago was your ICU experience? Is the acquired neuromuscular weakness reversible? How (and where) have you found support and help in managing the long-term effects of PICS?
It is very frustrating when you trying to piece it all together. Then to top it off trying to just heal inside and out and try be normal again. I have not had nightmares or hallucinations but i find im battling understanding the physical side after icu.
But i was also not told a thing for what to look out for or what to expect when i get home. I was lucky though to had made friends with the icu nurses, so i msg them to sometimes put pieces together. I do hope u get more answers
100% correct. We hope the Mayo N.P.'s take note of this trauma, which I also experienced, and start a program to educate clinicians in the U.S. Something good will then come of it. Offer CEU's. Otherwise, no one will read the literature.