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Liver transplant - Let's support each other

Transplants | Last Active: Nov 13 8:00pm | Replies (1617)

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@rosemarya

@jackie421blfdgurl, I am in Kentucky and my transplant Center in in Minnesota (750 miles). I can understand how the distance and travel planning can complicate things. I rely on my local primary care doctor who is willing to work in cooperation with my Transplant team at Mayo in MN.
Like you, I found myself at home and alone in a world on non-transplant family and friends. I find great comfort and companionship in the interaction with others who are like me on Connect. I enjoy learning from each other and supporting each other. I hope that you will feel the same.
I am sharing a link to some immunosuppressant medicine and side effects for you to look at. It is going to be your doctors who regulate and advise you about your meds.
Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/page/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/
When is your MRI? Is it local? or do you need to travel to the transplant center?
What is the status of your swelling and pain?

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Replies to "@jackie421blfdgurl, I am in Kentucky and my transplant Center in in Minnesota (750 miles). I can..."

You and this site is a god send to me. I was not aware of the problem with bone disease.
I have read a lot of info on my transplant and have researched all my 16 pills, especially
Since I had all those side effects. I am down to 6 pills.I had a CT scan on Friday so
Hopefully I will b able to connect with my doctor. We had 2feet of snow here in Jersey Sunday night till Tuesday am,(today)so I am hoping staff made it in. Thanks so much to all members I feel I would still b lost without this communication, even though my liver t/p
Team is good but they r doing a job they were trained for where we went thru the process.

I was at Mayo MN over the week and my meld score went up and I also was told that I have kidney cancer