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Liver transplant - Let's support each other

Transplants | Last Active: Jun 7 7:51pm | Replies (1594)

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@kimestes

Thank you. Gives me hope. It's so hard with covid-19 right now. I do what I can around the house, but lonely.

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Replies to "Thank you. Gives me hope. It's so hard with covid-19 right now. I do what I..."

I went through a lot of the same trials you have. It started when the discovered Hep c when I had my gallbladder removed. The surgeon had me go to a gastroenterologist and a hematologist. I gave my self interferon injections and took ribivirin every day for a year. My viral load came down but my liver had stage 4 cirrosis. Now they have a pill you take for a month. I struggled as my liver was damaged. I struggled with various episodes of swelling, varicies in the throat and many times had my throat banded. During this time my meld score was 7. In 2019 I had such high ammonia levels that my wife had to take me to the ER. They discovered a tumor in my liver and went through several chemo treatments. My meld score would jump to 17 and then fall to 7. I had to take a nap every day at work just to make it through the day. I made a visit to a Dr. He said I needed a Transplant. In the state I live in it takes several years to get a transplant. He referred me to the Mayo Clinic in Phoenix. I went through several months of tests and hospital visits. Had sepsis. I finally made the list and I had to relocate to Phoenix. I too decided to accept a Hep c liver. I worked from out of the house until I received a call that I had a doner. We went to the hospital and had the transplant and now a year later I am doing great. Take courage. It might be a long journey but stay strong. I thank God everyday for my new liver and for guiding me to the Mayo Clinic. The Dr's there were wonderful.