Connect
← Return to Liver transplant - Let's support each other
Discussion
Liver transplant - Let's support each other
Transplants | Last Active: 4 hours ago | Replies (1570)Comment receiving replies
Dan goes in for labs & clinic visits biweekly & they adjust his Prograf based on lab results. His transplant center is currently allowing 1 visitor in so I was able to be with him the entire time both pre & post transplant. They let me wait in his room during the procedure. His surgeons & nurses called me with updates every few minutes. I'm very grateful for text messaging. Throughout his procedure I was texting family & friends with the updates so I now have the entire day documented:-) The staff at his center are just incredibly amazing. Super heroes in my book. Dan started driving again last week. His coordinator said he could go back to his apartment any time now. We plan to have him stay with us through the holidays. It just warms my heart to look at my son & see a healthy & happy face! It certainly is an emotional journey to transplant. Dan was calm & so ready for it when he received the call that Sunday morning at 4:00 am. With all the craziness that happened in 2020, it wasn't such a bad year after all!! Blessings to all those waiting for their transplant. Keep in faith & remain hopeful. Miracles really do happen:-)
Replies to "Dan goes in for labs & clinic visits biweekly & they adjust his Prograf based on..."
Connect
@stella25 I'm so happy for you and your son that he has had his transplant. It's such a blessing and wonderful that he was home for the holidays and able to put that behind him.
You mention how calm and ready he was when he got the call. I was the same, it still amazes me that my husband and I drove the hour+ to Boston like it was just another day! It sounds as if his recovery was quick without problems, that is so wonderful. 2021 will be a great year, no longer having to think about the when and if of a transplant.
@paulapartyof1 That's wonderful that you want to be a live donor for your sister. She is blessed to have such a loving sister. I am not really familiar with the restrictions for living donors but if you both want that I hope her transplant center will allow it. It seems as if sometimes they prefer a deceased donor because they want the recipient to have a whole liver. I recall that when we first went to the hospital for a series of appointments with the different involved departments, my daughter told one of the doctors that she would like to be a living donor for me. She was told that they would consider it if needed but they preferred a whole liver for me. I have no idea why. I did end up with a deceased donor and everything has gone great. My transplant was at Mass General in Boston in September 2016.
@kimestes I hope you continue to do well and will not need to have more paracentesis done. I never needed that. It's amazing that you were having that, and that your weight is down so low, yet your MELD is only 6! Do you have other symptoms? Are all of the results from your workup in, or are there possibly some that are yet to be considered?
I wish the best for you. If you are not yet qualified to be a transplant candidate I hope you will feel well and are able to gain some more weight back. I know it's difficult to exercise at first but if you do you will feel stronger every day. I follow a couple of YouTube videos that cater to beginners and people over 50. They always emphasize to move at your own pace. Just push yourself a bit so that you will see improvements.
I hope too that you keep us up with how you are doing and if there are any changes. It really does seem odd that some people can be so sick but still have low MELD scores. I didn't feel very sick most of the time, my only real problem was HE episodes, but my MELD score started at around 11 I think but very quickly jumped to 18 and then got to 28 at which point I had my transplant.
JK