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Liver transplant - Let's support each other

Transplants | Last Active: May 16 6:52pm | Replies (1572)

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@rosemarya

@svezir, I want to extend a sincere welcome to Mayo Connect.
Congratulations on receiving your transplant. May 25 will forever be a special day in your life!

PSC is an ugly disease. I know, I transplanted for PSC in 2009 at Mayo Rochester. Like you I was stable for years, then the overwhelming symptoms developed. That must have been disappointing and frustrating for you to have 4 false alarms until you received your new liver on the 5th call. And now that is all behind you and sounds as if you are recovering well. Your muscle strength and endurance will return, so be patient.

How are you adjusting to being at home?

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Replies to "@svezir, I want to extend a sincere welcome to Mayo Connect. Congratulations on receiving your transplant...."

Thank you for your warm welcome. It is comforting know that another ex-patient of PSC is doing well after so many years (as you know PSC is not so common when it comes to liver disorders). To answer your question about being home, actually I am not home yet. I am an international patient from Istanbul, Turkey. I have been in Arizona since November 2019, staying with my sister, who lives here. So I have been away from my family about 8 months, wife and 18 year old girl and a 11 year old boy. I plan to go back mid July to reunite with them and come back for my periodic checks. Nonetheless, it was necessary to get this operation done and continue supporting them for the future. Looking forward to conversations in this forum.