Hi @xplantsister

I had my liver transplant five years ago. I had CMV twice; the first was two months after my transplant, and the second was four months later. The first time I was given Valgancyclovir in pill form and it seemed to recede. The second time I was hospitalized and given intravenous Gancyclovir for ten days followed by oral Valgancyclovir for three weeks at home. I am tested regularly but it has never recurred. At the time, my doctors reassured me that they had other medications they could use if the Valgancyclovir failed to work.

I recall being very tired and breathless but I was having difficulty with some of my meds at the time and my doctors were unsure what exactly was causing my symptoms; the meds or the CMV. In retrospect, the first year post transplant is hard for most people and equally hard for our carers but recovering from the CMV and the change in my meds was a turning point for me. Within a few weeks I was better than I had ever been and I now take only Adaport each day. So...take heart. I know it has probably been a long haul for you and your carer but, believe me, you are over the worst now.