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Liver transplant - Let's support each other

Transplants | Last Active: 3 days ago | Replies (1623)
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@jerrynord

I am having trouble getting my Tacrolinus medicine. My CVS Drug Store is out as are others. They are still trying to get it. Told me to call other pharmacies and then have my doctor write an order at that store. Been trying to get hold of my coordinator at Mayo Jacksonville for 2 days no reply. Anyone else is this situation or have any helpful info,

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Replies to "I am having trouble getting my Tacrolinus medicine. My CVS Drug Store is out as are..."
jeanne5009 | @jeanne5009 | May 13, 2020

Who is your coordinator at Mayo JaX? Mine is Meghan and she is out this week. See if you can reach Will
He is very helpful. Have you tried to reach them thru your portal messages?

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JK | @contentandwell | May 14, 2020

@jerrynord That's scary. I am on sirolimus and worried about that happening. Medicare will not allow them to fill a prescription for more than one month at a time. Otherwise, they would prescribe it for three months for me, but that's what the CVS specialty pharmacy that I use told me.
I hope the same does not happen with sirolimus.
MGH wants me to use the same generic all of the time but I presume if things did get desperate that they would be OK with any brand of sirolimus.
JK

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